Welcome, I'm Angela Edebiri, hosting, " What's your Pain Score?" I'm a parent of Sickle cell warrior. We will be talking to parents, carers exploring and debating issues that we face day to day caring for our children. The aim is to uplift, support and motivate all those on this journey. Why " What's your Pain score?" - well this is a all too familiar question asked when in hospital. Between 1 - 10, 1 being no pain and 10 being the worst, what is your pain score? Caring for someone can get lonely and you can feel isolated, especially if you are by yourself and this is what this show
Introducing Layla Lawson, founder of The Essenelle Foundation, a charity focused on mental health, emotional well-being and education for the Sickle Cell Community. Discussing the main goals for her foundation, what inspired her to set the charity up and how we can register our interest and get involved. Please note this was recorded prior to the launch. Check out the website, theessenellefoundation.co.uk
19 Feb 2021
In The Beginning
In the beginning
Your new baby has just been diagnosed with Sickle Cell Anaemia - what was your first thought ? In this episode we look at the emotional side of being told. Talking with one mum, Vanessa Robins, on how she came to terms with it, her coping strategies and advice that helped.
Vanessa Robins -
https://www.instagram.com/sicklecelldisease_parents/ - Instagram - Find a network of parents all over the world. Video clips sharing information and join the peer parent mentorship via the bio.
https://amzn.to/3iTxQEN Author: Robin Caz My baby has Sickle Cell Disease - Support and Guidance raising a child with Sickle Cell Disease
vanessarobins.com Creative Mindset Coach: Vanessa Robins, also known as the Fearless Coach, supports creative entrepreneurs through challenges faced in business
23 Oct 2020
"What's Your Pain Score?" (Trailer)
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