We wanted to create a platform where we could share our stories with you while also being true to our authentic selves. Tune in as we recount our crazy life adventures, all while managing our complex healthcare needs. From Maine to Boston, Colorado to the Colosseum, you'll hear it all. We are so excited for this journey into the world of podcasting and we hope you'll come along for the ride!
Find us on IG:
Mal: @curbcutsncocktails
Mais: @the_maisinator
Podcast: @WithMaisandMal
Subscribe to our Patreon:
https://www.patreon.com/WithMaisandMal
*Views expressed in this podcast are our own and are not affiliated with any organization.
In this episode, Mal unpacks everything it took to move across the country to the east coast. From apartment hunting and car rentals, to dance classes and doctor appointments.
5 Dec 2022
Travel With Mais and Mal
In this episode, Mais and Mal share their experiences traveling domestically and internationally. They share their run ins with TSA and the constant plague of inaccessibility, and some helpful things they've learned along the way.
If you want to chat with Mallory about how to make your bar, restaurant, hotel, or airline more accessible, check out her services on her website HERE
If you want to check out Maisy's Packing Spreadsheet, go HERE
@withmaisandmal
@the_maisinator
@curbcutsncocktails
25 Oct 2022
Hospital Beds and Hotels with Mais and Mal
In this episode, listen as Mais and Mal slowly unravel while talking about the inconsistencies and lack of communication within the healthcare system, but also all of the cool stuff they're working on!
@withmaisandmal
@the_maisinator
@curbcutsncocktails
5 Jul 2022
Graduate School With Mais & Mal
Places to Donate:
Abortion Funds by State
Planned Parenthood
Maine Family Planning
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In this episode we will be talking about our individual experiences in graduate school and higher education in general, why we decided to go, what we learned, and was it worth it?! We’ll also touch on how we found a balance between managing our health and navigating the more typical challenges that grad school presents.
@withmaisandmal
@the_maisinator
@curbcutsncocktails
31 May 2022
Getting Through 2022 With Mais & Mal
We know it's been a little while since our last podcast. Here's what we've been up to in the meantime!
Thanks for your patience as we wrap up degrees, navigate new jobs, and try to find some semblance of normalcy in this wild world.
As always, find us on social media and let us know what you want to hear more about!
@withmaisandmal
@the_maisinator
@curbcutsncocktails
4 Nov 2021
Healthcare Advocacy with Mais & Mal
In this episode, Maisy shares her most recent healthcare endeavors while balancing work, school, and life, and Mal talks about hearing from providers at a recent conference.
What advice would you give providers dealing with patients who have rare diseases?
How do you balance your health and the other parts of your life?
@withmaisandmal
@the_maisinator
@curbcutsncocktails
23 Sept 2021
Catch Up With Mais & Mal
We know it's been a little while since we've posted on here so we really appreciate your patience. Part of what we talk about is balancing a rare disease with living a "normal" life and sometimes that means some things get put on the back burner. But we're back! So thanks for sticking around.
Hear all the things we've been up to and all the changes that we've brought into 2021, as well as some exciting opportunities we have coming up!
Register for the Global Gene Summit!
We'll be presenting Wednesday, 9/29 at 12:50 EST
And as always, follow us on social media and check out our new website for more updates!
@withmaisandmal
15 Mar 2021
Tubies and Spoonies and Zebras! Oh my!
CW: Mention of mental health challenges & suicidal ideation
In this episode, we dig into the ways social media has helped and hindered the chronic illness & rare disease community, the ways in which we can seek support and the risk of getting caught up in the toxicity of social media as a whole.
We would love for this to be a dialogue of sorts so feel free to share your thoughts and opinions in the comments! This is definitely one of our heavier episodes thus far, so thank you for giving us the space to share our thoughts and our journey.
National Suicide Prevention Lifeline
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Subscribe to our Patreon
Follow us on Instagram
@curbcutsncocktails
@the_maisinator
@withmaisandmal
4 Mar 2021
With Mom, Mais, and Mal Pt. 2
We got so many good questions for our mom before our last episode that we wanted another chance to answer some of them. In this episode, we dig a little deeper in navigating the healthcare world as a new mom and as a family. Our mom also talks about the incredible advocacy work she's done on behalf of families with children who have special health care needs.
Subscribe to our Patreon
Follow us on Instagram
@curbcutsncocktails
@the_maisinator
@withmaisandmal
17 Jan 2021
With Mom, Mais, and Mal
In this episode, we host our first guest: our mom! She helps us answer some of your questions about our childhood and what it was like to raise two daughters with complex medical needs. It was a lot of fun reminiscing so we didn't get to every question, but she'll definitely be back for a part 2! Stay tuned!
Subscribe to our Patreon
Follow us on Instagram
@curbcutsncocktails
@the_maisinator
@withmaisandmal
24 Dec 2020
Deck the Halls With Mais & Mal
Join Mais & Mal as we share some of our favorite virtual holiday activities and some of our tips for getting through a cold, dark winter. Your feelings are valid and you are not alone. Happy Holidays! We're here for you.
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Mindfulness & Meditation:
Calm
HeadSpace
Insight
7 minutes to lower your stress in your body and mind
10 minutes to lower the tension in your body
Shine
Calming Anxiety
Movement:
Yoga with Adriene
Blogilates
(with kids!)
GoNoodle
YoMind Guided Meditations
Quick Easy Breathing Exercise
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Other Resources:
Talkspace
National Suicide Prevention Lifeline
800-273-8255
List of Warm Lines by State
---
Subscribe to our Patreon
Follow us on IG!
Mal: @curbcutsncocktails
Maisy: @the_maisinator
@withmaisandmal
25 Nov 2020
A COVID Thanksgiving with Mais & Mal
We talk open enrollment, thanksgiving, and how to connect with your family during this weird time!
26 Oct 2020
Check In With Mais & Mal
We know times are still weird for everyone so we just wanted to take a moment to check in with each other and let you know you're not alone. Sometimes social media makes it look like things are easy for people, but just know, everyone is doing their best to navigate these unprecedented times. As things start to open up again, don't feel guilty for making the choices that are best for you and your family.
If you are having a hard time, and need someone to talk to, reach out:
National Suicide Prevention Lifeline
800-273-8255
List of Warm Lines by State
Subscribe to our Patreon
Sign up for our Halloween Zoom
19 Oct 2020
Study Abroad With Mais and Mal
In this episode, Maisy recounts her study abroad adventures from London to Rome, Italy, Ireland, Scotland, and Paris. It was an unforgettable experience, but having a chronic illness definitely made things challenging.
Subscribe to our Patreon!
https://www.patreon.com/WithMaisandMal
Sign up for our Live Halloween Zoom Party!
We're going to be staying home for Halloween this year and we hope you do too. Join us for a Live Zoom Halloween Party on 10/31!
From 7:00-9:00 (EST)
Follow us on IG!
Mal: @curbcutsncocktails
Maisy: @the_maisinator
@withmaisandmal
21 Sept 2020
College With Mais and Mal
In this episode, Mais and Mal dive into their experience choosing and attending college. We talk about accommodations, communication, friends, professors, and so much more.
30 Aug 2020
Welcoming Maisy
In this episode, we recount what Maisy does remember and Mal helps fill in the blanks. We also discuss our different experiences in our school and community growing up.
Mal: @curbcutsncocktails
Maisy: @the_maisinator
27 Aug 2020
The Beginning
Mal describes our family's journey through a new diagnosis, some of the amazing people who helped us along the way, and... Michael Jackson?
Tune in!
4 Aug 2020
Meet Mais and Mal
Get to know Mais and Mal in this brief introduction episode. Hear why we wanted to start our own platform and what inspired us to share our voices. Tune in for more soon!
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