We are living ‘A Rare Reality’ and we want to tell you all about it! Join Jordan’s Guardian Angels as we cover dozens of topics in the rare disease space and give you a closer look at our groundbreaking research into Jordan’s Syndrome that could one day change the world. We want to uplift, advocate, motivate and inform.
A Rare Reality
Claim This Podcastby Jordan's Guardian Angels
5.0(11 reviews)
46 episodes
Updated Weekly
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Podcast Overview
We are living ‘A Rare Reality’ and we want to tell you all about it! Join Jordan’s Guardian Angels as we cover dozens of topics in the rare disease space and give you a closer look at our groundbreaking research into Jordan’s Syndrome that could one day change the world. We want to uplift, advocate, motivate and inform.
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Publishing Since
4/17/2023
1 verified contact email on file for A Rare Reality
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Recent Episodes
November 27, 2025
A Rare Reality – Season 5, Episode 13: 2025 Thankful Podcast!
It’s our favorite podcast of the year when the JGA Team gets together and reflects on how much we are all thankful for! A must listen and don’t forget to chime in with what you are thankful for too!! Happy Thanksgiving to all of you!
September 8, 2025
A Rare Reality – Season 5, Episode 12: Human Clinical Trial Update
Carole Bakhos joins us for an update on where we stand with the clinical trial. There are a few spots open now so take a listen to see if you are eligible to get involved. A must listen for all of our families!
July 20, 2025
A Rare Reality – Season 5, Episode 11: Parent Power – Tips and Tricks to Help You Thrive
This episode we sit down with Lisa McCarty and we are talking all things BEHAVIOR! We deep dive into how she has used her years of teaching experience to help support here son, decreasing the frequency of self injurious behavior and finding calm. Take a listen! This podcast might just help you find calm in […]
46 total episodes available
Recent guests on A Rare Reality
Guests from recent episodes — sign up to see every guest that has ever appeared on this show.
Lisa McCarty
Guest
Leslie Batuyong
Guest
Dana Garrett
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Frequently asked questions
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- What is A Rare Reality?
- How often does this podcast release new episodes?
This podcast updates weekly.
- Where can I listen to this podcast?
This podcast is available on 8 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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