AiArthritis Voices 360 Talk Show

About AiArthritis Voices 360 Talk Show

On Sunday, join International Foundation for AiArthritis and fellow patient cohosts as they lead discussions in the patient community as well as consult with stakeholders worldwide to solve the problems that matter most in the AiArthritis community.

Publisher

International Foundation for Autoimmune & Autoinflammatory Arthritis

Category

education · health & fitness

Language

en

Explicit

No

First episode

19 Feb 2020

Latest episode

6 Sept 2026

Latest episodes

131 episodes in the feed.

1. 

   6 Sept 2026

   Ep 125: When Pain Becomes Your Normal: Pain Isn’t Just One Thing

   Chronic pain can become such a regular part of life with an AiArthritis disease that it changes your understanding of what "normal" feels like. But pain isn't always tied to active inflammation or a disease flare, and even one person can experience many different types of pain. In recognition of Pain Awareness Month, host Leila is joined by patient advocates Deb and Kerry for a candid conversation about what living with chronic pain really looks like. Drawing from their own experiences and lived experience data from the AiArthritis community, they explore the many factors that can influence pain, including fatigue, activity, joint damage, sleep, stress, and more. They also discuss how learning to recognize and describe different types of pain can help patients better communicate what they're experiencing with their healthcare team. From navigating changing pain levels to the trial and error of finding relief, this episode explores the realities of chronic pain that a number on a pain scale can't always capture. Episode Highlights Why chronic pain can change a person's perception of what "normal" pain feels like How pain can persist even when an AiArthritis disease appears well controlled What lived experience data reveals about the factors patients say influence their pain Why understanding the location, sensation, and patterns of pain can improve conversations with healthcare providers The challenges of balancing helpful movement with overexertion and recognizing when your limits have changed What years of trial and error can teach patients about managing chronic pain Why lived experiences are helping shape future AiArthritis Voices 360 conversations and resources

2. 

   2 Aug 2026

   Ep 124: Finding the Movement That’s Right for YOU

   Exercise is one of the most recommended ways to manage AiArthritis diseases, yet for many patients, staying active can feel overwhelming. Pain, fatigue, disease flares, and mental health challenges often make the advice to "just exercise more" unrealistic. In this episode, Leila P.L. Valete and Eileen Davidson explore what research and lived experience reveal about movement, physical activity, and exercise for people living with AiArthritis diseases. Drawing from research presented at EULAR 2026, patient lived experience data, and their own personal journeys, Leila and Eileen discuss the barriers that prevent people from staying active and why movement looks different for everyone. They also explore the connection between physical activity and mental health, highlighting how anxiety, depression, and chronic pain can affect motivation while sharing practical strategies that make movement more accessible. Whether you're just getting started or adapting your routine during a flare, this episode offers realistic guidance, trusted resources, and encouragement to help you find movement that works for your body. Episode Highlights: What EULAR 2026 research revealed about exercise and non-pharmacological care Common barriers that make physical activity difficult for people living with AiArthritis diseases The connection between movement, mental health, and long-term disease management Patient experiences with adapting exercise during flares and changing symptoms Practical movement ideas and trusted resources to help you stay active safely Links & Resources Just One Move - https://justonemove.ca/ Arthritis Research Canada Education Series - https://www.arthritisresearch.ca/education-series/strong-with-arthritis/ Arthritis Foundation - https://www.arthritis.org/health-wellness/healthy-living/physical-activity/getting-started/your-exercise-solution Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org Donate to Support the Show: www.aiarthritis.org/donate Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE Connect with our Co-Hosts: Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Connect with Leila: Tiktok: @Lupuslifestyle.lei Eileen Davidson is a rheumatoid arthritis patient advocate from Vancouver Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador, among others. When not advocating she is writing about her experience with arthritis through Creaky Joints, Healthline, Chronic Eileen or can be found being a mom to her son Jacob. Connect with Eileen: Twitter: @ChronicEileen

3. 

   5 Jul 2026

   Ep 123: What We Learned at EULAR 2026

   Every year, the AiArthritis team returns from EULAR with new research, expert interviews, and important conversations. This year, they also gathered lived experience data from the community to better understand how the topics discussed at the conference compare with what patients experience every day. In this episode, host Leila P.L. Valete is joined by patient representative James Hollen to revisit the biggest themes from EULAR 2026, including fatigue, pain, mental health, and the impact of disease on work and daily life. They share what the community told us through lived experience surveys, reflect on James' first EULAR conference as a patient representative, and explore why patient voices are becoming an essential part of research conversations. Whether you followed our Go With Us! coverage or are hearing about EULAR for the first time, this episode highlights how lived experiences help shape better research, more meaningful conversations, and a stronger future for patient care. Episode Highlights: What lived experience surveys revealed about fatigue, pain, mental health, and quality of life How patient perspectives aligned with key research presented at EULAR 2026 James' reflections from attending his first EULAR conference as a patient representative Why patient voices are becoming an essential part of research and healthcare innovation How community feedback will help shape future AiArthritis Voices 360 conversations Links & Resources: Fatigue Survey: https://bit.ly/fatigueLED Fatigue EULAR: https://youtu.be/0e57fykYImc Mental Health & Exercise Survey: https://bit.ly/mentalhealthLED Mental Health & Exercise EULAR: https://youtu.be/Akc5So6ePd0 Pain Survey: https://bit.ly/painLED Pain EULAR: https://youtu.be/Y7vFImtSfBw Work & School Survey: https://bit.ly/workandschoolLED Work & School EULAR: https://youtu.be/fzygxv1CewU Cell Therapy (CAR-T) Survey: https://bit.ly/celltherapyLED Cell Therapy (CAR-T) EULAR: https://youtu.be/f7fkAK_u94o AiArthritis Talk Show Community Response Form: https://bit.ly/AiArthritisVoices360Response Playlist to All Videos: https://youtube.com/playlist?list=PLZW5ZyvNnYl1_ZCVQQCw2ucGik3rrICMP&si=pkUFTjGGA29RjbSU Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org Donate to Support the Show: www.aiarthritis.org/donate Follow AiArthritis on all social media platforms @IFAiArthritis Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE Connect with our Co-Hosts: Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Connect with Leila: Tiktok: @Lupuslifestyle.lei

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

YouTube views

160

Score snapshot 15 Sept 2025

Apple Podcasts (US)

5.0 / 5

7 ratings

Spotify

5.0 / 5

2 ratings

Podcast Authority Score: 62 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

67

Social presence

0

YouTube

64

Engagement

81

Contact AiArthritis Voices 360 Talk Show

Guest appearances

Books guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.

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