Every Voice Speaks
Claim This Podcastby The SPEAK Foundation
Podcast Overview
<p>Every Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering lived experience, it strengthens advocacy, advances research, and supports better futures for kids and adults living with muscular dystrophy.</p>
Language
🇺🇲
Publishing Since
1/28/2026
1 verified contact email on file for Every Voice Speaks
Pitch yourself as a guest, propose sponsorships, or reach out directly to the host.
Recent Episodes
June 4, 2026
Episode #005 - The Muscular Dystrophy Landscape: 40 Years of Progress
<p>Parent Project Muscular Dystrophy got its start in 1994, when Pat Furlong and a group of parents and grandparents decided they couldn’t wait any longer for progress in Duchenne research. After her sons, Christopher and Patrick, were diagnosed in 1984, Pat refused to accept that there was “no hope and little help.” In this episode, we talk about how far the field has come, the real challenges behind life-changing work, and where the community is headed next.</p>
May 15, 2026
Episode #004 - Stuck Waiting: Who Gets Left Behind in Muscular Dystrophy Drug Development?
<p>Today, we’re asking a question that’s becoming harder to ignore: Who is the current drug development system actually built for—and who is it leaving behind?</p><p>Science is advancing at an unprecedented pace, access to that science is not keeping up—and it’s not reaching everyone equally. Kat and Pat welcome bioethisist Rafael Escondon to break this all down and talk about where and how the voice of the patient fits in.</p>
April 6, 2026
Episode #003 - Being Disabled is Expensive
<p>This episode highlights the real financial burden of adults living with a rare chronic illness. Hosts Kat and Pat center lived experience, and connect personal stories to larger systemic issues. Episode 3 features Abby Lehner, a young woman living in Boston who helps us understand that being disabled is expensive in more ways than simply financial.</p><p></p><p>To connect with our guests for questions and further discussion:</p><p>Kathryn Bryant: <a rel="noopener noreferrer nofollow" href="mailto:kathryn@thespeakfoundation.com" target="_blank"><b>kathryn@thespeakfoundation.com</b></a></p><p>Patrick Moeschen: <a rel="noopener noreferrer nofollow" href="mailto:pmoes@comcast.net" target="_blank"><b>pmoes@comcast.net</b></a></p><p></p><p></p>
5 total episodes available
Deep-dive analytics for Every Voice Speaks
Frequently asked questions
Have a different question and can't find the answer you're looking for? Reach out to our support team by sending us an email and we'll get back to you as soon as we can.
- What is Every Voice Speaks?
<p>Every Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering lived experience, it strengthens advocacy, advances research, and supports better futures for kids and adults living with muscular dystrophy.</p> - How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
Legal Disclaimer
Pod Engine is not affiliated with, endorsed by, or officially connected with any of the podcasts displayed on this platform. We operate independently as a podcast discovery and analytics service.
All podcast artwork, thumbnails, and content displayed on this page are the property of their respective owners and are protected by applicable copyright laws. This includes, but is not limited to, podcast cover art, episode artwork, show descriptions, episode titles, transcripts, audio snippets, and any other content originating from the podcast creators or their licensors.
We display this content under fair use principles and/or implied license for the purpose of podcast discovery, information, and commentary. We make no claim of ownership over any podcast content, artwork, or related materials shown on this platform. All trademarks, service marks, and trade names are the property of their respective owners.
While we strive to ensure all content usage is properly authorized, if you are a rights holder and believe your content is being used inappropriately or without proper authorization, please contact us immediately at hey@podengine.ai for prompt review and appropriate action, which may include content removal or proper attribution.
By accessing and using this platform, you acknowledge and agree to respect all applicable copyright laws and intellectual property rights of content owners. Any unauthorized reproduction, distribution, or commercial use of the content displayed on this platform is strictly prohibited.