Family Support Stories exists to amplify the voices and stories of unpaid family caregivers, connect aging and disability networks, and bridge the gap between research, policy, and the lived experiences of families providing support. Check out more, including archived episodes, on fsrtc.ahs.uic.edu.
This podcast is created with funding from the National Institute on Disability, Independent Living, and Rehabilitation Research (Grant #90RTGE0006). The content is solely the responsibility of the authors and does not necessarily represent the official views of NIDILRR, ACL, or HHS.
In this episode of Family Support Stories, we speak with Ann Morris and Samantha Alloway about the IDD Navigator. The IDD Navigator is a free online tool created to provide families with a more accessible, centralized way to access services, learn about resources, and gain information in Illinois.
Ann Morris, who co-led the creation of IDD Navigator with a team at Little City and the Magnetize agency, will share the inspiration, process, and impact behind its development. She will also introduce and explore how to use the IDD Navigator and what resources are available on it.
Samantha Alloway will then speak on how, as a parent, she sees the meaning and impact a tool like the IDD Navigator can have on families and how a tool like this contributes to advocacy, action, and change
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Ann Morris is Chief of Communications & External Affairs for Little City Foundation. In this role, Ann serves on the executive leadership team and oversees strategic marketing direction, external marketing communications, government affairs, and internal communications.
Samantha Alloway is the Executive Director of Illinois. She comes to this work with a professional and personal lens as her child was diagnosed with autism spectrum disorder when he was 3, which is a driver in her passion for the work she does. She is going to speak on her experience with the IDD navigator from both of her perspectives.
25 Jun 2026
A Story of Belonging
On today’s episode we will be hearing from three different people and their perspectives on one experience. Daphne, an adult with an Intellectual and Developmental Disability, her sister Tamar, and her friend Tina will be sharing the story of when Daphne attended her 45th high school reunion in October 2025 and the importance of belonging.
20 Apr 2026
Bridging the Advocacy Divide
In this episode of Family Support Stories, we speak with Dr. Helen Rottier, author and Dr. Morton Ann Gernsbacher, about their joint chapter in Disability Alliances and Allies: Opportunities and Challenges. Helen is an autistic researcher at the Wiseman Center at the University of Wisconsin-Madison, and Morton is a professor at the University of Wisconsin-Madison.
Their chapter, titled “Autistic Adult And Non-autistic Parent Advocates: Bridging the Divide”, explores the separation and merging of goals and discussions between autistic self-advocates and nonautistic parent advocates.
This episode discusses what US national priorities can bridge previous divides, creating space for autistic adult and non-autistic parent advocates to work together in establishing policies and practices that improve life for autistic people and their families and communities.
20 Feb 2026
In Sickness and in Health
We speak with Dr. Laura Mauldin, author and professor at the University of Connecticut, about her new book In Sickness and In Health. Blending memoir with the stories of caregivers across the country, Dr. Mauldin reflects on how ableism, cultural expectations about love, and gaps in America’s social safety net shape the realities of caregiving. Together, they explore the concept of “The One,” (which refers to the person who carries the overwhelming weight of care), and examine how policy, culture, and community responses can either isolate caregivers or help redistribute the labor of care more collectively.
21 Jan 2026
Caregiving in Rural Communities
In this episode of Family Support Stories, we explore the realities of family caregiving in rural communities, where distance, limited services, workforce shortages, and gaps in data create unique challenges for families. Lillie Greiman of the Rural Institute at the University of Montana shares research insights on rural disability prevalence, unpaid caregiving, and the policy implications of incomplete data. The conversation highlights why rural caregivers are often overlooked in program planning and how state policies (such as paid family caregiving) can shape outcomes for families and communities. The episode also features Erin Rolando, a disabled and multiply neurodivergent parent living in a rural area, who offers a firsthand account of navigating education, healthcare, transportation, and caregiving with limited local supports. Together, these perspectives underscore the need for person-centered data, cross-system collaboration, and policies that truly reflect the lived experiences of rural caregiving families.
11 Sept 2025
Caring for Ourselves, Caring for Our Families
In this episode of Family Support Stories, we talk with Dr. Sandy Magaña and promotora Lilia about the Poder Familiar program, a culturally grounded initiative supporting Latino families raising children with intellectual and developmental disabilities. They share how promotoras build trust, foster resilience, and create community connections that empower families with both practical tools and emotional support. Tune in to hear how Poder Familiar and interventions like it are reshaping outcomes for the whole family.
Una transcripción en español de este episodio está disponible en go.uic.edu/ShowNotes (https://uofi.box.com/s/ef3sa5990fjg81u4bvwp2ntob49u4zvx)
A transcript and show notes are available at go.uic.edu/ShowNotes (https://uofi.box.com/s/ir8t6rrkuwv1ye648kr0t3vevz8vjztu)
18 Jun 2025
Making Respite Count
Sociologist Dr. Rebecca Utz and caregiver Rocio Perez examine the impact of respite care on family caregivers, revealing how intentional planning and community support reduce stress and improve well-being in this interview episode.
24 Apr 2025
Together in Care™
Guests Toni Gingerelli (National Alliance for Caregiving) and Amy Robins (PHI) discusses the Together in Care™ Initiative. The initiative aims to improve care outcomes by enhancing the partnership between family caregivers and direct care workers. The discussion highlights the importance of stable care partnerships, the role of care teams, and the potential of self-directed care models. Sharon Costabile then discusses her journey as a caregiver for her daughter Rachel, who has Down Syndrome, and the challenges and successes of building a care team. Sharon advocates for better support systems for families, and family caregivers having a “seat at the table” in policy decisions.
13 Feb 2025
The Family Support Crisis
Show Notes Available at fsrtc.ahs.uic.edu/resources/ (https://fsrtc.ahs.uic.edu/resources/)
This episode discusses the challenges faced by unpaid family caregivers, particularly those supporting individuals with intellectual and developmental disabilities (IDD). Yolanda, the mother of a 40-year-old daughter with IDD, shares her experiences providing full-time care while dealing with her own aging and health issues. Joe Caldwell, a researcher, highlights the critical role of family caregivers, noting there support needs for family caregivers is increasing due to an aging population and a direct care workforce crisis. Solutions discussed include expanding self-direction in care, improving respite care, and the RAISE Family Caregiver Council's national strategy to support caregivers.
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