Gilles is in the air
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Podcast Overview
<p>A podcast series hosted by the European Society for the Study of Tourette Syndrome (ESSTS).<br />We discuss the latest findings on Tourette syndrome, share stories, and create connections.<br />Every month we will talk about tics, associated comorbidities and lived experiences; our episodes are aimed at researchers, clinicians, patients and their families.<br />We interview authors whose papers have caught our attention, discuss hot topics that may seem controversial, share different ways of educating the community on TS and hopefully, we will all learn something about Tourette that we had yet to discover.<br />So please, tune in, turn up the volume, and keep on listening… 🎧<br />And if you find the episode interesting, hit subscribe and please share! <br /><a href="https://essts.org" target="_blank" rel="noreferrer noopener">essts.org</a></p> <p><span>A topic to suggest? An idea to share? </span><span>Get in touch with </span>Christelle Nilles<span>, our Podcaster-in-chief, at secretary@essts.org!</span></p>
Language
🇺🇲
Publishing Since
5/28/2023
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Recent Episodes
April 2, 2026
From TS diagnosis to disclosure: how do you share your story? Part II
" ...and it was so weird that something I was trying to erase all my life, I had to suddenly defend it" In this compelling second part, Salomé, an artist from France, shares her profound experiences of living with the condition and how it has shaped her life, relationships, and self-awareness. Salomé candidly discusses the challenges and growth that come with embracing her diagnosis, providing insight into the nuanced realities of managing Tourette Syndrome—an aspect that's often misunderstood by society at large. In our conversation with Salomé, we explore the intersections of living with Tourette Syndrome and maintaining a career as an artist, offering a deeply personal perspective on navigating societal expectations and personal identity. She opens up about the misconceptions surrounding Tourette Syndrome, particularly the misbelief that it's primarily characterized by the utterance of "rude words" as she puts it. Instead, she offers a revealing look at the variety of her symptoms, vocal tics and hyper-focus, and how these influence her artistic practice. We also discuss the role that family plays in forging an understanding of the condition, and the unique challenges of conveying the reality of living with Tourette to romantic partners and colleagues. Dive into this episode for an intimate look at resilience and authenticity in the face of adversity. Thank you Salomé for your engaging narrative! Website
April 2, 2026
From TS diagnosis to disclosure: how do you share your story? Part I
In the latest episode of "Gilles is in the Air," we delve into the nuanced experiences of individuals living with Tourette Syndrome. This episode, the first of a two-part series, welcomes Belinda from the UK and France, and Belén from Argentina who lives is Spain. Through candid conversations, our guests share their personal journeys with Tourette Syndrome, discussing their initial diagnoses, the social challenges they've encountered, and how they've navigated sharing their experiences with others. María Belén Prieto is an Argentine psychologist living in Spain, specialised in Tourette syndrome and its common comorbidities, including ADHD. As an adult with Tourette and ADHD herself, she brings both professional expertise and lived experience to her work, fostering understanding, empathy, and empowerment within the community. She is a proud mother of twins and a passionate traveler, values that deeply shape her perspective on resilience and connection.María Belén is a member of the steering committee of Tics and Tourette Across the Globe (URL) and actively contributes to awareness, advocacy, and education at both national and international levels. Through her platform Voces del Tourette, she shares psychoeducational resources, promotes visibility, and amplifies the voices of individuals and families living with Tourette. She is deeply committed to supporting the Tourette community through education, collaboration, and compassionate outreach. Website | info@vocesdeltourette.com Belinda Johnston grew up in the West Midlands of the United Kingdom. A 2017 Joint Honours French and Italian graduate of the University of Leeds, UK, she now works as an Event Coordinator in Paris, France, where she has lived since 2018. In her spare time, she enjoys running, yoga, cinema, singing and is an active member of the local Church of England Christian community.Belinda has lived with Tourette’s Syndrome all her life. She was officially diagnosed at the age of 5, in the UK, in the year 2000. She also has ADHD and suffers from anxiety. She has previously battled with depression.Belinda tries to support the Tourette’s community where she can, taking part in her local hospital’s neurological department’s research projects and generally talking about Tourette’s and what it is really like to live with it. In 2018, she published an interview with BBC3’s MisFITS Like US’s Terrina Bibb on UK Tourette’s charity, Tourette’s Action’s blog. You can read it here.
February 22, 2026
Eye blinking abnormalities in Tourette syndrome: Blink more or blink differently?
In this episode we welcome esteemed guests Dr Julius Verrel and Dr Alexander Münchau to delve into their recent publication (Parkinsonism and Related Disorders Journal) on eye blinking abnormalities in Tourette Syndrome. They offer a deep dive into the intricacies of eye blinking patterns, shedding light on the distinctions between normal blinking, blink tics, and potential pathological blinks. We talk about the historical and recent studies comparing blink rates in individuals with Tourette Syndrome to healthy controls, and the challenges in distinguishing between typical and atypical blinks. Dr Verrel highlights the study's focus on understanding the characteristics of blink tics, aiming to differentiate them from physiological blinks. Through meticulous analysis, the researchers employed manual and automated methods to observe blink patterns, considering features like duration, amplitude, and temporal distance. This examination aimed to uncover potential markers that signify tics, contributing to a better understanding of Tourette Syndrome. Regarding the innovative use of high-resolution video recordings to dissect blink features with greater accuracy, Dr Münchau notes that ongoing collaborations with machine learning experts are set to enhance the precision of identifying atypical blinks. This technological advancement promises more refined diagnostic and research techniques, opening paths to potentially utilising blinking abnormalities as biomarkers for Tourette Syndrome. Alexander Münchau studied medicine in Hamburg and Berlin, Germany. He spent 3 years at the Institute of Neurology, Queen Square in London. From 2001 to 2013 he worked in the Neurology Department of Hamburg University Hospital where he became Consultant in 2003. In 2013, he became head of the newly founded interdisciplinary Department of Paediatric and Adult Movement Disorders and Neuropsychiatry at the Institute of Neurogenetics and speaker of the Center for Rare Diseases at the University of Lübeck; since 2020, he is Director of the Institute of Systems Motor Science at the University of Lübeck. Julius Verrel studied mathematics and cognitive neuroscience and completed a PhD in experimental psychology. He worked for several years at the Max-Planck-Institute for Human Development in Berlin. He has been working as a research scientist at the Institute of Systems Motor Science at the University of Lübeck since 2017.
29 total episodes available
Recent guests on Gilles is in the air
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Dr Noa Benaroya Milstein
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Tamara Pringsheim
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Dr Anna Castrioto
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- What is Gilles is in the air?
<p>A podcast series hosted by the European Society for the Study of Tourette Syndrome (ESSTS).<br />We discuss the latest findings on Tourette syndrome, share stories, and create connections.<br />Every month we will talk about tics, associated comorbidities and lived experiences; our episodes are aimed at researchers, clinicians, patients and their families.<br />We interview authors whose papers have caught our attention, discuss hot topics that may seem controversial, share different ways of educating the community on TS and hopefully, we will all learn something about Tourette that we had yet to discover.<br />So please, tune in, turn up the volume, and keep on listening… 🎧<br />And if you find the episode interesting, hit subscribe and please share! <br /><a href="https://essts.org" target="_blank" rel="noreferrer noopener">essts.org</a></p> <p><span>A topic to suggest? An idea to share? </span><span>Get in touch with </span>Christelle Nilles<span>, our Podcaster-in-chief, at secretary@essts.org!</span></p> - How often does this podcast release new episodes?
This podcast updates bi-weekly.
- Where can I listen to this podcast?
This podcast is available on 6 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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