Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org
Why Multidisciplinary ALS Care Matters: Colin Quinn, MD
Colin Quinn, MD, helps lead the Penn Comprehensive ALS Center in Philadelphia, PA. In this video, Dr. Quinn discusses what led him to ALS research, his work in veterans care, advances in understanding of TDP-43, and the value of multidisciplinary care. Learn more about his work at: https://www.pennmedicine.org/specialties/neuromuscular-disorders-care/comprehensive-als-center
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
29 Sept 2026
Understanding ALS Clinical Trials with Jeremy Shefner, MD, PhD
Jeremy Shefner, MD, PhD, had decades of experience leading ALS research. In this GOALS Podcast, he talks about measuring the success of potential therapies, what is needed for successful clinical trials, and early ALS symptoms and diagnosis. Learn more about his work at the Barrow Neurological Institute at https://www.barrowneuro.org/person/jeremy-shefner-md-phd/
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Support an ALS United Mid-Atlantic Walk at www.alsunitedwalk.org
22 Sept 2026
Candice Ray on Joining the ALS United Mid-Atlantic Board
Candice Ray is the Founder and Chief Executive Officer at Helping Hands Warming Hearts LLC. She is one of the newest members of the ALS United Mid-Atlantic board. In this discussion, Candice shares her personal experience with ALS, the skills she brings to the board, and her drive to expand advocacy and programs to help families impacted by ALS.
Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.
To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org
Who has been a guest on GOALS: An ALS United Podcast
Names identified in recent episode analyses. Showing up to five guests.
Daniel Kelly
Dr Zachary Simmons
Dr Kathleen Twomey
Mark VandeBraak
Tim Kurkjian
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
5.0 / 5
1 ratings
Spotify
5.0 / 5
1 ratings
Podcast Authority Score: 24 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
Quality
48
Social presence
0
YouTube
0
Engagement
0
Contact GOALS: An ALS United Podcast
Guest appearances
Books guests
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