Hypermobility Happy Hour is the first podcast exclusively dedicated to discussing hypermobility conditions including hypermobile Ehlers-Danlos Syndrome.
Guests on the Hypermobility Happy Hour have included world renowned physicians, patient advocates, researchers, and individuals living with hypermobility.
Listen in as we examine a wide range of topics, including treatment options for hypermobility disorders and ways to improve the doctor-patient relationship.
The information provided on this podcast is for educational purposes only and not for the diagnosis or treatment for any individual. Hypermobility conditions can be complex and difficult to treat and it is extremely important to work with trained medical specialists for any diagnosis or treatment.
82 - Meghan O'Rourke on The Invisible Kingdom: Reimagining Chronic Illness
On this episode, Kerry interviews Meghan O’Rourke, an author, poet, editor and podcaster who was diagnosed with hypermobile Ehlers-Danlos Syndrome after many years of navigating the medical system. In 2022, Meghan published The Invisible Kingdom: Reimagining Chronic Illness, a groundbreaking account of her own experience navigating the medical system which became a New York Times best seller.
The book is part memoir, part history of the medical system and its biases, part philosophy about the identity of the self and one’s identity while ill, and partly a discussion of the state of scientific research relevant to many chronic illnesses.
Links:
Meghan O'Rourke's website, available at: https://meghanorourke.com/
Meghan O'Rourke's Substack, available at: https://substack.com/@meghanorourke
The Invisible Kingdom: Reimaging Chronic Illness, available at: https://www.amazon.com/Invisible-Kingdom-Reimagining-Chronic-Illness/dp/1594633797
20 Sept 2024
81 - My Hypermobility: New Children's Book on Hypermobility by Leah Pinnington
In this episode, Leah Pinnington discusses My Hypermobility, the children's book she wrote about her daughter's experience with hypermobility. Leah advocates for better awareness about hypermobility in schools and her book has been successful internationally.
Links:
Instagram: https://www.instagram.com/leahpinnington_author/
My Hypermobility on Amazon: https://www.amazon.com/My-Hypermobility-Leah-Pinnington/dp/1738437205
My Hypermobility at Target: https://www.target.com/p/my-hypermobility-by-leah-pinnington/-/A-91860135
14 Sept 2024
80 - Help! I'm Hypermobile Podcast Host and Hypermobility Specialist Osteopath Alexandra Orfanides
This episode features a discussion with Alex Orfanides, Masters in Osteopathy and Bachelor of Arts (honors), a hypermobility specialist osteopath and content creator who hosts the fantastic podcast Help! I’m Hypermobile. Alex has a unique blend of expertise gained through her prior degree in English literature and her clinical work with elite athletes. She challenges conventional perspectives on clinical outcomes in hypermobile patients and is dedicated to helping individuals with hypermobility (including hypermobile Ehlers-Danlos syndrome) to achieve their goals.
Alex’s academic background fuels her commitment to promoting informed consent in healthcare settings, emphasizing the importance of patients understanding not only the “what” but also the “why” when it comes to their experiences and conditions. This dedication to answering the “why” questions has led to the successful establishment of her social media presence, the Hypermobility HQ Discord community, and the Help! I’m Hypermobile podcast. Alex is committed to doing her best to make the world a better place for hypermobile people.
A friendly reminder that this podcast is for informational and educational purposes only, it is not advice. If you have questions or are having trouble finding resources or professionals, please feel free to reach out to us at hypermobilityhappyhour@gmail.com
Links:
Help! I'm Hypermobile podcast available at: https://podcasts.apple.com/us/podcast/help-im-hypermobile/id1691592838
Hypermobility HQ: https://hypermobilityhq.com/contact
Instagram: https://www.instagram.com/hypermobilityhq/
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
4.9 / 5
108 ratings
Spotify
4.9 / 5
50 ratings
Contact Hypermobility Happy Hour
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