*Disclaimer: Opinions shared in this podcast may not reflect the opinions of Catalyst Pharmaceuticals, Inc.
Let’s talk about rare diseases. The LEMS Aware Podcast lets you hear directly from people in the Lambert-Eaton myasthenic syndrome (LEMS) and other rare disease communities on topics that matter. We talk with patients and caregivers who want to share more than their story – they want to ignite conversations about LEMS and common rare disease experiences and needs. Join us as we talk about building community and how to discuss the hard topics in the LEMS Aware Podcast.
LEMS is a rare neuromuscular disease that can have a profound effect on a person's mobility and quality of life. LEMS typically causes severe debilitating and progressive weakness in the upper legs and hips, making it difficult for a person to walk or even stand. LEMS affects approximately 3,000 people in the United States.
www.LEMSaware.com and the LEMS Aware Podcast are brought to you by Catalyst Pharmaceuticals, Inc.
The LEMS Aware Podcast is produced by Salem Oaks
LEMS Aware
Claim This Podcastby Catalyst Pharmaceuticals, Inc.
Podcast Overview
*Disclaimer: Opinions shared in this podcast may not reflect the opinions of Catalyst Pharmaceuticals, Inc. Let’s talk about rare diseases. The LEMS Aware Podcast lets you hear directly from people in the Lambert-Eaton myasthenic syndrome (LEMS) and other rare disease communities on topics that matter. We talk with patients and caregivers who want to share more than their story – they want to ignite conversations about LEMS and common rare disease experiences and needs. Join us as we talk about building community and how to discuss the hard topics in the LEMS Aware Podcast. LEMS is a rare neuromuscular disease that can have a profound effect on a person's mobility and quality of life. LEMS typically causes severe debilitating and progressive weakness in the upper legs and hips, making it difficult for a person to walk or even stand. LEMS affects approximately 3,000 people in the United States. www.LEMSaware.com and the LEMS Aware Podcast are brought to you by Catalyst Pharmaceuticals, Inc. The LEMS Aware Podcast is produced by Salem Oaks
Language
🇺🇲
Publishing Since
2/2/2022
1 verified contact email on file for LEMS Aware
Pitch yourself as a guest, propose sponsorships, or reach out directly to the host.
Recent Episodes
December 12, 2025
The Invisible Reality of LEMS
A healthcare provider and LEMS Patient shares how she balances work and family life while managing the invisible symptoms of LEMS.
December 5, 2025
Welcome to The LEMS Aware Podcast
Amy Grover introduces a new series focused on real stories and support for those impacted by Lambert-Eaton myasthenic syndrome.
May 1, 2024
Transforming LEMS Challenges into Courage
<p>On this episode of the LEMS Aware podcast, we are joined by Patrick, who shares his challenging journey to receiving a LEMS diagnosis. As someone dedicated to serving others through work and church, Patrick struggled with suddenly needing to rely on others for help. His diagnosis process forced him to take significant time off, burning through his sick leave. Like many of our guests, Patrick's experience taught him the importance of being in tune with his body, recognizing when something feels "off," and persistently advocating for himself to seek answers about his health.</p><p><a href="https://LEMSaware.com" target="_blank">LEMSaware.com</a> was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS. Wherever you are on your journey-searching for the right doctor, the right diagnosis, or the right treatment-this site can guide you to that next milestone. </p><p><br /></p>
13 total episodes available
Deep-dive analytics for LEMS Aware
Frequently asked questions
Have a different question and can't find the answer you're looking for? Reach out to our support team by sending us an email and we'll get back to you as soon as we can.
- What is LEMS Aware?
- How often does this podcast release new episodes?
This podcast updates weekly.
- Where can I listen to this podcast?
This podcast is available on 10 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
Legal Disclaimer
Pod Engine is not affiliated with, endorsed by, or officially connected with any of the podcasts displayed on this platform. We operate independently as a podcast discovery and analytics service.
All podcast artwork, thumbnails, and content displayed on this page are the property of their respective owners and are protected by applicable copyright laws. This includes, but is not limited to, podcast cover art, episode artwork, show descriptions, episode titles, transcripts, audio snippets, and any other content originating from the podcast creators or their licensors.
We display this content under fair use principles and/or implied license for the purpose of podcast discovery, information, and commentary. We make no claim of ownership over any podcast content, artwork, or related materials shown on this platform. All trademarks, service marks, and trade names are the property of their respective owners.
While we strive to ensure all content usage is properly authorized, if you are a rights holder and believe your content is being used inappropriately or without proper authorization, please contact us immediately at hey@podengine.ai for prompt review and appropriate action, which may include content removal or proper attribution.
By accessing and using this platform, you acknowledge and agree to respect all applicable copyright laws and intellectual property rights of content owners. Any unauthorized reproduction, distribution, or commercial use of the content displayed on this platform is strictly prohibited.