Living with Parkinson’s

About Living with Parkinson’s

The Good, the Bad, and the Reality Your Source of Strength, Hope, and Support. Diagnosed with Parkinson’s in 2010 at age 40, Bryce Perry has spent over 15 years navigating the daily challenges, unexpected changes, and surprising lessons that come with living with a progressive disease. Through it all, he’s found purpose, perspective - and plenty of humour. Living with Parkinson’s is a real, raw, and often surprisingly funny podcast that explores what life is truly like with Parkinson’s. Whether you’re newly diagnosed, deep into your journey, or supporting someone who is, this show delivers honest stories, practical advice, and a healthy dose of encouragement. From medication and mindset to relationships, work, identity, and adapting to constant change, Bryce dives into the good, the bad, and - most importantly - the reality of life with Parkinson’s. It’s a podcast built on truth, resilience, and the belief that you can still live fully, even when life looks different than expected. Listeners say: “You nailed it. I thought I was alone until I found your videos.” “I laughed out loud… and then cried. This is exactly what I needed today.” “Bryce says what we’re all thinking but don’t always have the words for.” “Your honesty and humor are a gift. Please keep sharing.” New episodes every week. Subscribe and join a growing community of people who are doing life today - together.

Publisher

Bryce Perry | DOING LIFE TODAY

Category

health & fitness

Language

en

Explicit

No

First episode

7 Apr 2025

Latest episode

8 Oct 2026

Latest episodes

162 episodes in the feed.

1. 

   8 Oct 2026

   Parkinson’s Freezing: 5 Things That Could Be Making It Worse

   You’re walking along just fine and suddenly your feet stop. Your brain says GO. Your feet say, “We’re currently unavailable. Please try again later.” That’s Parkinson’s freezing. It isn’t hesitation, laziness, or forgetting how to walk. It can feel like your brain sent the message, but your feet never opened the email. 5 things making your freezing w… In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I share five things that may make freezing episodes even harder: • Thinking freezing is a choice • Trying to force your way through it instead of pausing and resetting • Ignoring your personal freezing triggers like doorways, turning, crowds, or rushing • Waiting until you freeze to figure out which cueing strategies work for you • Letting embarrassment keep you silent about what’s happening and what actually helps We also talk about building a freezing toolbox before you need it. Counting, rhythm, shifting your weight, stepping over a visual or imaginary line, or another cue may help different people at different times. 5 things making your freezing w… You’ll hear Carmen’s Care Partner Corner, where Carmen explains why grabbing, pulling, rushing, or firing instructions at someone who is frozen can add even more pressure. Her advice? Stay calm. Ask what helps. Protect their dignity. And I give you one sentence you can share with family and friends: “When I freeze, I’m not choosing to stop. My brain is having trouble starting the movement, and I may need a second, a cue, or some space to reset.” 5 things making your freezing w… Because freezing is not failure. Sometimes your brain simply needs another route forward. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://dolifetoday.com) You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://dolifetoday.com/first-90-days-parkinsons) 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://club.dolifetoday.com) ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://club.dolifetoday.com) 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠ (https://dolifetoday.com/inner-circle) 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://bit.ly/3262ymG) ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://bit.ly/4h27D3y) 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://podcast.dolifetoday.com) “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

2. 

   7 Oct 2026

   Parkinson’s Dyskinesia: The Levodopa Fear We Need to Talk About

   Dyskinesia can be scary. Your body moves without permission. People stare. You become self-conscious, and suddenly the medication helping you move today starts feeling like something you should fear tomorrow. But after more than 15 years on levodopa, I want to have an honest conversation about that fear and why I personally do not regret starting levodopa early. dyskinesia Edited In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, we talk about: • What dyskinesia actually looks and feels like • Why dyskinesia and tremor are not the same thing • How fear of dyskinesia can influence medication decisions • My own experience balancing levodopa, ON time, and side effects • Why my neurologist once reduced my medication when I told him I felt 100% • Why I still believe starting levodopa when I did gave me years of quality of life • How tracking dyskinesia can give your neurologist better information dyskinesia Edited The lesson my neurologist taught me took years to fully appreciate: The goal wasn’t for me to feel perfect for one hour. It was to help me feel good enough for as long as possible, using the medication plan that gave me useful ON time while managing side effects. You’ll also hear directly from Carmen in Carmen’s Care Partner Corner, where she talks about protecting dignity when dyskinesia happens in public and why care partners should ask before they assume what kind of help someone wants. And I give you a simple framework for explaining dyskinesia to your neurologist: “I’m noticing involuntary movements around ___, usually ___ after my dose, mostly in my ___, and they seem worse when ___.” dyskinesia Edited Because this isn’t about fearing medication or changing it yourself. It’s about finding the best balance for your life with your healthcare team. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://dolifetoday.com) You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://dolifetoday.com/first-90-days-parkinsons) 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://club.dolifetoday.com) ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://club.dolifetoday.com) 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠ (https://dolifetoday.com/inner-circle) 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://bit.ly/3262ymG) ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://bit.ly/4h27D3y) 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://podcast.dolifetoday.com) “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

3. 

   6 Oct 2026

   Parkinson’s Sleep: 5 Mistakes That Can Ruin Your Next Day

   Do you ever wake up feeling like the day is already mad at you? Your feet haven’t even hit the floor. Your body is stiff, your brain is foggy, your energy is gone, and you’re thinking: “How am I already tired? I was literally asleep.” Welcome to Parkinson’s sleep, where being asleep and actually being restored are not always the same thing. 5 Parkinson s sleep mistakes Th… In this episode of Living with Parkinson’s: The Good, the Bad, and the Reality, I share five sleep mistakes that may be making tomorrow harder: • Treating sleep as separate from Parkinson’s • Ignoring nighttime wearing OFF, stiffness, and difficulty turning in bed • Letting bathroom trips repeatedly interrupt your sleep without looking for patterns • Using your phone as a sleep aid when it may actually wake your brain up even more • Not tracking what happens overnight, leaving you with nothing more specific to tell your doctor than “I’m tired” One of the biggest takeaways is simple: Sleeping and resting are not necessarily the same thing. Eight hours in bed can still include stiffness, bathroom trips, medication wearing OFF, strange dreams, and long stretches staring at the ceiling. 5 Parkinson s sleep mistakes Th… You’ll also hear Carmen’s Care Partner Corner, where Carmen shares a much better question than: “You slept all night. Why are you tired?” Try: “Was your sleep restful?” And I give you a simple sentence to take to your doctor: “I’m noticing a pattern where I usually wake up around ___, usually because of ___, and the next morning I feel ___.” Timing. Cause. Impact. That gives your healthcare team something much more useful to work with than simply saying you’re exhausted. For more Parkinson’s tips, tools, and community support, visit:🌐 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://dolifetoday.com) You’ll find guides, community resources, and practical strategies to help you keep doing life today. 🚨 Newly Diagnosed with Parkinson’s? ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Start Here⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://dolifetoday.com/first-90-days-parkinsons) 🏠 Join The Club by Doing Life Today for Parkinson's support, tools, and community:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://club.dolifetoday.com) ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://club.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://club.dolifetoday.com) 🔴Get information about the Inner Circle ⁠⁠⁠⁠⁠⁠⁠⁠https://dolifetoday.com/inner-circle⁠⁠⁠⁠⁠⁠⁠⁠ (https://dolifetoday.com/inner-circle) 🔔 Subscribe for weekly motivation and support ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/3262ymG⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://bit.ly/3262ymG) ▶️ Video Podcast Playlist ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://bit.ly/4h27D3y⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://bit.ly/4h27D3y) 🎧 Audio Podcast ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcast.dolifetoday.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (https://podcast.dolifetoday.com) “With Parkinson’s, medication is like coffee. It’s not about how strong it is. It’s about when you take it.” ⚠️ Important Note This is my personal Parkinson’s journey. What works for me may not work for everyone. Parkinson’s is different for each person, and medication plans should always be discussed with your doctor or healthcare provider. #Parkinsons #ParkinsonsDisease #ParkinsonsIsolation #LivingWithParkinsons #ParkinsonsPodcast #ParkinsonsSupport #ParkinsonsTips

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)

4.4 / 5

18 ratings

Contact Living with Parkinson’s

Guest appearances

Does not typically book guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.

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Questions about Living with Parkinson’s