by Jessica Krauser
<p>The Secret Life of Parkinson's is a podcast created by Parkinson's patients, sharing their stories and interviewing others, on things we deal with on a daily basis. It's hard for people with PD to talk to others about the disease because sometimes it's difficult for the patient themselves to describe what they are feeling. Talking to other PD patients helps us express what we are going through in ways we might not be able to express to family and friends.</p>
Language
🇺🇲
Publishing Since
2/1/2022
Email Addresses
1 available
Phone Numbers
0 available
March 20, 2025
<p><span>Martha Carlin is back! And this time she is partnering with Lisa, a YOPD patient and President of Resolving Parkinson's. They are working on a documentary project aimed at sharing lived experience stories from patients to help shape research and treatment approaches. The discussion also highlights the need for a holistic approach to Parkinson's care, addressing not just medication but also lifestyle factors such as stress management and gut health.</span></p><p><br></p><p><span>00:00 The Importance of Patient Voices in Parkinson's Advocacy</span></p><p><span>09:59 Creating a New Paradigm for Parkinson's Care</span></p><p><span>19:51 Documentary Project: Sharing Lived Experiences</span></p><p><span>29:46 Innovative Approaches to Parkinson's Treatment</span></p><br/><br/>Advertising Inquiries: <a href='https://redcircle.com/brands'>https://redcircle.com/brands</a><br/><br/>Privacy & Opt-Out: <a href='https://redcircle.com/privacy'>https://redcircle.com/privacy</a>
March 17, 2025
<p><span>In this episode of The Secret Life of Parkinson's, Diane, a therapist and Parkinson's patient, shares her journey with the disease and how it intersects with her work in mental health. The conversation explores the challenges of socialization for those with Parkinson's, the importance of community support, and coping mechanisms for managing mental health. Diane emphasizes the need for therapy and the value of connecting with others who understand the struggles of living with Parkinson's.</span></p><p><br></p><p><span>00:00 Introduction to Parkinson's and Mental Health</span></p><p><span>03:10 Diane's Journey with Parkinson's</span></p><p><span>05:54 The Intersection of Therapy and Parkinson's</span></p><p><span>09:01 Socialization and Community Support</span></p><p><span>12:00 Coping Mechanisms and Mental Health</span></p><p><span>15:12 Navigating Medication and Treatment</span></p><p><span>17:57 Addressing Night Terrors and Hallucinations</span></p><p><span>20:44 Conclusion and Encouragement for Seeking Help</span></p><br/><br/>Advertising Inquiries: <a href='https://redcircle.com/brands'>https://redcircle.com/brands</a><br/><br/>Privacy & Opt-Out: <a href='https://redcircle.com/privacy'>https://redcircle.com/privacy</a>
March 12, 2025
<p><span>In this conversation, Katherine shares her journey as a caregiver for her husband with Parkinson's disease. She emphasizes the importance of advocacy, navigating the healthcare system, and the adjustments required in caregiving. The discussion also touches on the impact of Parkinson's on relationships and the significance of teamwork in caregiving. Katherine's insights as a certified patient advocate provide valuable guidance for both caregivers and patients.</span></p><p><br></p><p><span>00:00 Introduction to Caregiving and Parkinson's</span></p><p><span>02:05 Katherine's Journey into Caregiving</span></p><p><span>04:00 The Diagnosis Experience</span></p><p><span>07:03 Understanding Parkinson's Symptoms</span></p><p><span>10:02 The Role of Caregivers</span></p><p><span>12:58 Support Groups and Community Learning</span></p><p><span>16:01 The Importance of Medication and Exercise</span></p><p><span>19:00 Advocacy and Patient Rights</span></p><p><span>21:50 Navigating the Healthcare System as a Caregiver</span></p><p><span>24:57 Adjusting to Life with Parkinson's</span></p><p><span>27:50 The Impact of Parkinson's on Relationships</span></p><p><span>30:14 Becoming a Certified Patient Advocate</span></p><p><span>33:09 Working Together as a Team in Caregiving</span></p><br/><br/>Advertising Inquiries: <a href='https://redcircle.com/brands'>https://redcircle.com/brands</a><br/><br/>Privacy & Opt-Out: <a href='https://redcircle.com/privacy'>https://redcircle.com/privacy</a>
Davis Phinney Foundation
The Michael J. Fox Foundation for Parkinson’s Research
Sheryl Lowenhar
Curiouscast
The Parkinson's Life Podcast
Parkinson’s Foundation
Podot
Dr. Michael Hyland, DPT, CEEAA
No Silver Bullet 4 PD
Dave Clark & Kuhan
Power Over Parkinson's
Brian Grant Foundation
The Michael J. Fox Foundation for Parkinson’s Research
Chris
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