by Sheryl Lowenhar
The Parkinson’s Experience is a podcast hosted by a Person with Parkinson’s (PWP) and based on her daily experiences. Listen in on her journey living with the disease and how she lives her best life with humor, generosity, empathy and knowledge. Her conversations with experts and patients like you are fascinating and authentic. They cover relevant topics from DBS (Deep Brain Stimulation) to exercise to diet to medications to much more difficult subjects like personal relationships. Of the few podcasts available on this topic, don’t skip this one from the viewpoint of a patient. Thank you to my sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about Parkinson's treatment options, please visit DBSandMe.com
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🇺🇲
Publishing Since
5/15/2020
Email Addresses
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April 8, 2025
<p class="MsoNormal">$41M, 41 days, 2800 miles. Those are the stats for Team Human Potential who competed in the World’s Toughest Row. The boat race happens annually and showcases teams of four, rowing across the Pacific Ocean from California to Hawaii. Patrick Morrisey with Team Human Potential became the first person with Parkinson’s to finish the race. They raised over $41M for the Michael J Fox Foundation for Parkinson’s research. Amazing.</p> <p class="MsoNormal">We spoke with Patrick and his skipper, Brendan Cusick about their experiences, challenges, commitment, and learnings on the trip. What did it reveal about working together and becoming close brothers in the end? How did Patrick manage his symptoms while rowing and living on a small boat for 41 days? What did they learn about their mental and physicial limitations? What’s next?</p> <p><span style= "font-size: 14pt; font-family: Calibri, sans-serif;">Listen on to enjoy some time with this engaging, generous and courageous team.</span></p> <p><span style= "font-size: 14pt; font-family: Calibri, sans-serif;"><a href= "https://humanpoweredpotential.org/">https://humanpoweredpotential.org/</a></span></p> <p><span style= "font-size: 14pt; font-family: Calibri, sans-serif;"><a href= "https://www.dbsandme.com/en.html">https://www.dbsandme.com/en.html</a> </span></p>
March 10, 2025
<p class="MsoNormal">Some of my favorite episodes are when we hear personal stories from people on the same journey as us. Every story is different but all of them can help us find our way, learn from each other and get motivated to live your best life. On today’s episode, I have a conversation with Lisa Volenec. She was diagnosed as young onset PD which is defined as diagnosed at age of less than 50. It is estimated that only about 10% of the PD population is diagnosed with young onset. However, we know this is growing due to many factors including pesticides and our diets. This is a growing concern for health policy and community support organizations.</p> <p class="MsoNormal">Lisa represents this demographic. Still working at a TV station and under a lot of stress, you’ll hear how she navigated her disease and employment over the years. How she came to a place where she decided to "own her truth." She will also open up about the decision to have DBS surgery and the outcomes from that.</p> <p class="MsoNormal"><a href= "https://www.dbsandme.com/en.html">https://www.dbsandme.com/en.html</a></p> <p class="MsoNormal"><a href= "https://www.michaeljfox.org/news/early-onset-parkinsons-disease">https://www.michaeljfox.org/news/early-onset-parkinsons-disease</a></p> <p class="MsoNormal"><a href= "https://www.3newsnow.com/rebound/positively-the-heartland/stunned-by-an-early-onset-parkinsons-diagnosis-omaha-woman-now-finds-purpose"> https://www.3newsnow.com/rebound/positively-the-heartland/stunned-by-an-early-onset-parkinsons-diagnosis-omaha-woman-now-finds-purpose</a></p> <p class="MsoNormal"> </p>
February 26, 2025
<p class="MsoNormal">Have you heard about the new medication delivery systems or pumps recently approved by the FDA? It has generated a lot of buzz at support groups, clinics and social media. What do these pumps do that makes them different and a new tool for our Movement Disorder Specialist to use to help People with Parkinson's live well with Parkinson’s? What can you expect? When should I ask my doctor about if its right for me?</p> <p class="MsoNormal">I asked Dr. Ospina these questions and more, including the new long-acting oral levodopa called Crexont. <span style="mso-spacerun: yes;"> </span>She has answered other important questions in the past and has a great way of explaining things so regular people can understand.</p> <p><span style= "font-size: 12.0pt; font-family: 'Calibri',sans-serif; mso-ascii-theme-font: minor-latin; mso-fareast-font-family: DengXian; mso-fareast-theme-font: minor-fareast; mso-hansi-theme-font: minor-latin; mso-bidi-font-family: Arial; mso-bidi-theme-font: minor-bidi; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;"> If you want to learn more about the pumps or even a recommendation of when to go from oral to pump to DBS, this is your episode.</span></p> <p><span style= "font-size: 12.0pt; font-family: 'Calibri',sans-serif; mso-ascii-theme-font: minor-latin; mso-fareast-font-family: DengXian; mso-fareast-theme-font: minor-fareast; mso-hansi-theme-font: minor-latin; mso-bidi-font-family: Arial; mso-bidi-theme-font: minor-bidi; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;"> <a href= "https://www.vyalevhcp.com/">https://www.vyalevhcp.com/</a></span></p> <p><span style= "font-size: 12.0pt; font-family: 'Calibri',sans-serif; mso-ascii-theme-font: minor-latin; mso-fareast-font-family: DengXian; mso-fareast-theme-font: minor-fareast; mso-hansi-theme-font: minor-latin; mso-bidi-font-family: Arial; mso-bidi-theme-font: minor-bidi; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;"> <a href= "https://www.onapgo.com/">https://www.onapgo.com/</a></span></p> <p><span style= "font-size: 12.0pt; font-family: 'Calibri',sans-serif; mso-ascii-theme-font: minor-latin; mso-fareast-font-family: DengXian; mso-fareast-theme-font: minor-fareast; mso-hansi-theme-font: minor-latin; mso-bidi-font-family: Arial; mso-bidi-theme-font: minor-bidi; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;"> <a href= "https://crexont.com/">https://crexont.com/</a>. </span></p> <p><span style= "font-size: 12.0pt; font-family: 'Calibri',sans-serif; mso-ascii-theme-font: minor-latin; mso-fareast-font-family: DengXian; mso-fareast-theme-font: minor-fareast; mso-hansi-theme-font: minor-latin; mso-bidi-font-family: Arial; mso-bidi-theme-font: minor-bidi; mso-ansi-language: EN-US; mso-fareast-language: ZH-CN; mso-bidi-language: AR-SA;"> <a href= "https://www.dbsandme.com/en.html">https://www.dbsandme.com/en.html</a> </span></p>
Davis Phinney Foundation
The Michael J. Fox Foundation for Parkinson’s Research
Jessica Krauser
The Parkinson's Life Podcast
Curiouscast
Dr. Michael Hyland, DPT, CEEAA
Parkinson’s Foundation
No Silver Bullet 4 PD
Power Over Parkinson's
Podot
Chris
Dave Clark & Kuhan
NPR
Everything Happens Studios
Hidden Brain, Shankar Vedantam
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