Podcast thumbnail for My Congenital Heart | Heart Disease, Ehlers Danlos Syndrome, Chronic Illness, Mental Health

My Congenital Heart | Heart Disease, Ehlers Danlos Syndrome, Chronic Illness, Mental Health

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by iris_jolie

5.0(5 reviews)
8 episodes
Updated Daily
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Podcast Overview

Welcome to My Congenital Heart Podcast! It's a wild rollercoaster of heart failure, chronic illness, mental health mayhem, and a whole bunch of life’s curveballs—like homelessness and domestic violence and dad's dying. Yeah, it’s been a lot. But here’s the thing: I’m still standing. And I’m here to tell you that even when life is like, “Nah, you’re not gonna make it,” we show up, we laugh, we cry, and we keep going -- because that's what warriors do. Join me for stories of survival, strength, and how not to lose your mind—even when you feel like it.

Language

🇺🇲

Publishing Since

12/2/2024

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Recent Episodes

Episode thumbnail for Playing the Hand You're Dealt | Perseverance Through Pain, Congestive Heart Failure & Chronic Illness

April 17, 2026

Playing the Hand You're Dealt | Perseverance Through Pain, Congestive Heart Failure & Chronic Illness

<p>In this episode of My Congenital Heart, we talk about the weight of stress, the reality of living with congestive heart failure along with post op reconstructive surgery, and how to keep pushing forward when life feels overwhelming. Chronic illness can test you mentally, physically, and emotionally—but it can also reveal a strength you didn’t know you had.</p><p>We’ll explore ways to cope with daily challenges, manage stress in difficult moments, and find perseverance when the road feels heavy. If you’ve been feeling exhausted, discouraged, or stretched thin, this episode is a reminder that even in hard seasons, you are stronger than you think.</p><p>Sometimes the greatest victories come from simply refusing to quit.</p>

Episode thumbnail for Facing Fear and Asking for Help | Concussions, Memory Loss, CHF and Chronic Illness

April 14, 2026

Facing Fear and Asking for Help | Concussions, Memory Loss, CHF and Chronic Illness

<p>What happens when multiple concussions start affecting your memory—and then you’re told you need surgery? In this episode, we’re talking about fear, recovery, and the moment you realize you can’t do it alone.</p><p><br /></p>

Episode thumbnail for The Cost of Living | Concussions, Chronic Illness, and Life With CHD & CHF

April 12, 2026

The Cost of Living | Concussions, Chronic Illness, and Life With CHD & CHF

<p>This episode quietly explores the moments of realization that catch up to us—when we finally see beyond our own world and feel the weight of what we’ve missed. It touches on the subtle arrival of aging, the sting of loneliness, and the complicated mix of guilt and shame that comes with deeper awareness.</p><p>At its core, it’s also a reflection on the body keeping score—navigating chronic illness, past injuries, and the ongoing reality of living with heart conditions. </p>

8 total episodes available

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Frequently asked questions

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What is My Congenital Heart | Heart Disease, Ehlers Danlos Syndrome, Chronic Illness, Mental Health?

Welcome to My Congenital Heart Podcast! It's a wild rollercoaster of heart failure, chronic illness, mental health mayhem, and a whole bunch of life’s curveballs—like homelessness and domestic violence and dad's dying.

Yeah, it’s been a lot.

But here’s the thing: I’m still standing. And I’m here to tell you that even when life is like, “Nah, you’re not gonna make it,” we show up, we laugh, we cry, and we keep going -- because that's what warriors do.

Join me for stories of survival, strength, and how not to lose your mind—even when you feel like it.

How often does this podcast release new episodes?

This podcast updates daily.

Where can I listen to this podcast?

This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.

Does this podcast accept guests?

No, this podcast does not typically feature guests.

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