by darshanramanagoudra
My name is Darshan and I suffer from one of the most painful conditions to exist - cluster headaches. So I started MyClusters - a cluster headache app and a research platform In this podcast series, we will aim to understand that pain, go beyond that pain into what cluster headaches are, what research says about it, how we can create more awareness and advocate for better so that one day cluster headaches don't have to dictate our lives.
Language
🇺🇲
Publishing Since
12/23/2025
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May 5, 2026
<p>In this episode, I speak with Christine, a chronic clusterhead from Norway, and an advocate, spreading awareness and supporting other sufferers. </p><p><br></p><p>Disclaimer: MyClusters is not a medical podcast and anything discussed should not be considered medical or health advice. It is for informational purposes only. All views expressed are entirely personal.</p><p>Sensitive content: Living with cluster headaches is a hard reality. In this episode, we discuss anxiety, depression, suicidal thoughts and euthanasia. If you are struggling with thoughts of self harm please reach out to a medical professional or call suicide hotlines in your country:</p><p>https://findahelpline.com/</p><p>https://www.iasp.info/</p><p><br></p><p>Follow Christine at </p><p>- https://www.instagram.com/klasepodden.123/</p><p>- https://open.spotify.com/show/5N1C31lRT9HOo0H3hk7eIZ?si=0bcf32bbbd084921</p><p><br></p><p>Clusterbuds support group </p><p>- https://discord.gg/clusterbuds</p><p><br></p><p>In this episode, we speak about </p><ul><li>Her first attack and diagnosis journey </li><li>Different treatments she's tried over the years </li><li>Her current treatment protocol </li><li>Community support and how it can help </li><li>Difference between migraines and cluster headaches </li><li>Psychological burden, therapy and how to deal with facets of CH on top of the attacks </li><li>How depression can creep in and lead to harmful thoughts </li><li>How her family, partner supports her </li></ul><p>And many more topics </p><p>Let us know in the comments what you think. </p><p><br></p><p><br></p>
April 9, 2026
<p>Disclaimer: MyClusters is not a medical podcast and anything discussed should not be considered medical or health advice. It is for informational purposes only. All views expressed are entirely personal. </p><p>Sensitive content: Living with cluster headaches is a hard reality. In this episode, we discuss anxiety, depression, suicidal thoughts and euthanasia. If you are struggling with thoughts of self harm please reach out to a medical professional or call suicide hotlines in your country: </p><p>https://findahelpline.com/</p><p>https://www.iasp.info/</p><p><br></p><p>In this episode of MyClusters - Beyond the pain, I speak with Dr. Rolf Fronczek - Neurologist, Somnologist, Cluster headache researcher, and leading Clusterhoofdpijn Leiden at the LUMC. </p><p><br></p><p>It is packed with different relevant topics. We speak about </p><ul><li>How Dr. Fronczek's initial research in sleep turned him towards cluster headache treatment and research </li><li>Overlap in Neurology and Somnology </li><li>Hypothalamus - what it is </li><li>Hypothalamus - why is it difficult to study </li><li>Hypothalamalus and the biological clock - role in regulating sleep and circadian rhythms </li><li>Circadian rhythm disruptions in cluster headache </li><li>Sleep hygiene - why it's hard with cluster headaches and small ways to improve when not in a cycle </li><li>Difference between cluster headache and migraine </li><li>What are triggers? </li><p><br></p></ul><p>And many other topics. Tune in, let us know in the comments what you think. </p><p><br></p>
March 20, 2026
<p>Cluster headache awareness day special! In the run up for awareness day on March 21st we are releasing a special episode. </p><p>Disclaimer: MyClusters is not a medical podcast and anything discussed should not be considered medical or health advice. It is for informational purposes only. All views expressed are entirely personal. </p><p>Sensitive content: Living with cluster headaches is a hard reality. In this episode, we discuss anxiety, depression, suicidal thoughts and euthanasia. If you are struggling with thoughts of self harm please reach out to a medical professional or call suicide hotlines in your country: </p><p>https://findahelpline.com/</p><p>https://www.iasp.info/</p><p><br></p><p>In this episode, I speak with Dr. Mario Peres, neurologist, founder of the São Paulo Headache Center and Program Director of the Headache Medicine training for the Neurology Residency Program at Albert Einstein Hospital in São Paulo, Brazil. Dr. Peres is also the president of the International Headache society. View his full profile here: https://ihs-headache.org/people/mario-f-p-peres/</p><p><br></p><p>Among other things we talk about </p><ul><li>Severity and suffering of cluster headaches </li><li>The importance of treatment and follow ups during remission </li><li>What can we learn from the way MS is treated? </li><li>Anticipatory anxiety that clusterheads feel </li><li>Integrated care and therapy for cluster headaches </li><li>Cluster headache medications on the WHO essentials list </li><li>Why advocacy and awareness campaigns are important </li></ul><p>Let us know what you think in the comments </p>
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My name is Darshan and I suffer from one of the most painful conditions to exist - cluster headaches. So I started MyClusters - a cluster headache app and a research platform
In this podcast series, we will aim to understand that pain, go beyond that pain into what cluster headaches are, what research says about it, how we can create more awareness and advocate for better so that one day cluster headaches don't have to dictate our lives.
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