Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.
Navigating PVS
Claim This Podcastby Jen Joly
5.0(4 reviews)
9 episodes
Updated Daily
Accepts GuestsHas SponsorsLocation 🇺🇸
21
Podcast Authority
BetaPoorBased on show quality, social media presence, reviews, charts, and more
Quality28
Social0
YouTube0
Engagement32
Podcast Overview
Pediatric Pulmonary Vein Stenosis (PVS) is rare and life-changing—but you don’t have to face it alone. Join creator and host Jen Joly, a PVS mom and advocate, as she shares real stories of resilience, hope, and community from families navigating this devastating diagnosis.
Language
🇺🇲
Publishing Since
3/9/2025
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21
Podcast Authority
BetaPoorBased on show quality, social media presence, reviews, charts, and more
Quality28
Social0
YouTube0
Engagement32
6
Excellent Areas
0
Good Performance
13
Growth Opportunities
excellent
Episode Length
51 minutes
Performing excellently!
needs improvement
Publishing Consistency
Every 27 days
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Recent Episodes
March 25, 2026
Experiencing Love and Loss with PVS
<p>💗 This is a very emotional conversation discussing child loss. Consider having tissues handy and taking breaks as needed while listening. 💗</p><p>In this episode, Jen Joly is joined by fellow PVS mom Brenna Smith for a deeply personal and courageous conversation about losing a PVS warrior – her son, Knoxley.</p><p>Brenna shares Knoxley’s story, from a high-risk pregnancy and extreme prematurity to life in the NICU, a PVS diagnosis, and the complex medical journey that followed. Together, Jen and Brenna talk about what it means to fight for your child through unimaginable highs and lows, while also holding the reality that time may be limited.</p><p>At the heart of this episode is the experience of loss: what it looks like to say goodbye, to process grief, and to carry forward the love and legacy of a child who changed everything.</p><p>Because even in the deepest heartbreak, there is meaning, connection, and the enduring impact of a life so fiercely loved.</p>
November 11, 2025
Finding Comfort in the Cold Realities of PVS
<p>In this episode, Jen Joly is joined by fellow PVS mom Haley Jezewski for an honest conversation about their daughters’ shared love of the cold — and how both moms have learned to keep breathing through it all. </p><p>Haley shares the story of her daughter Emma’s birth, NICU stay, and Pulmonary Vein Stenosis diagnosis, while also navigating her own health challenges and the demands of military family life. Together, Jen and Haley talk about what comes after the diagnosis: the endless waiting, the quiet fear, and the small victories that make each day worth living.</p><p>Because life with PVS doesn’t come with a roadmap, this episode explores what it means to find comfort, and even a little light, in the coldest seasons of parenting.</p>
September 11, 2025
PVS Life: The Fridge Is Broken and the Phone Won’t Stop Ringing
<p>In this episode, Jen Joly is joined by fellow PVS mom Lauren Bizarro, a former bench scientist who now works in cancer pharmaceuticals, to share the story of her son Myles and their family’s journey with pulmonary vein stenosis. From the shock of a “quiet baby” leading to an emergency admission, to life on an eight-week catheter schedule, Lauren talks openly about the relentlessness of PVS — how it acts like cancer, but isn’t cancer, and the impossible tasks families face along the way.</p><p>Together, Jen and Lauren dive into what life really looks like when the refrigerator breaks and the phone won’t stop ringing. They also challenge assumptions that caths are “easy,” while finding ways to keep perspective, grieve the life you thought you’d have, and the confidence needed to navigate it all. </p>
9 total episodes available
Recent guests on Navigating PVS
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Jori Monich
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Frequently asked questions
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- What is Navigating PVS?
- How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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