Life. Mental Health. Rare Disease. That’s what Never Give Up is all about. This podcast is a companion to my blog, PKUJournal.com. I’m Kevin Alexander, and I’ve been a professional storyteller for over 20 years. I’m also an adult living with the rare disease Phenylketonuria, or PKU. Since 2012 I’ve been traveling the world advocating for PKU, newborn screening, and rare disease awareness. Living with a rare disease can be a heavy burden, so on this podcast I share thoughts, reflections, and stories to motivate you on your journey.
Never Give Up: A Rare Disease Podcast
Claim This Podcastby Kevin Alexander
5.0(17 reviews)
33 episodes
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Podcast Overview
Life. Mental Health. Rare Disease. That’s what Never Give Up is all about. This podcast is a companion to my blog, PKUJournal.com. I’m Kevin Alexander, and I’ve been a professional storyteller for over 20 years. I’m also an adult living with the rare disease Phenylketonuria, or PKU. Since 2012 I’ve been traveling the world advocating for PKU, newborn screening, and rare disease awareness. Living with a rare disease can be a heavy burden, so on this podcast I share thoughts, reflections, and stories to motivate you on your journey.
Language
🇺🇲
Publishing Since
3/12/2023
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Recent Episodes
July 9, 2024
Season 2 Ep. 10 | Recognize Your Limits
Life can change sharply. I finished writing this episode in late May. In late June, my sister-in-law, Angel Alexander, passed away from a rare, aggressive form of breast cancer. She received her diagnosis in early 2023, while I was writing Season 1 of this podcast. Over the last 18 months I watched as she showed the world how much of a courageous, fierce cancer warrior she was. She dedicated the remainder of her life to raising awareness of cancer. And she taught me what it means to never give up. And so, I dedicate this season in her honor. She was the most courageous, determined person I’ve ever met. While working on this season I knew this might be happening soon. But it still didn’t feel real. When I wrote this episode called “Recognize Your Limits”, it had a different meaning to me. I share in the episode that I’m taking a break for a while. Well, given this death in my family I will be taking an extended break from this podcast, advocacy, and social media. I don’t know when I’ll be back. But I will. Until then, please share this show with someone you know who could use some hope. Tell those whom you love that you love them, hug them tight, and never take them for granted. And never, never, never give up. Transcript Available A transcript of this episode is available on my blog. About Never Give Up: A Rare Disease Podcast This is a storytelling podcast exploring the intersection of life, mental health, and rare disease. Sometimes I interview guests, but mostly… I just want to tell you some stories. Stories about hope. Perseverance. Self-worth. Self-care. Stories that hopefully inspire you to keep going. And to never, never, never give up. Contact Kevin Alexander Website: PKUJournal.com Instagram: @kevinalexander_pku Facebook: @pkujournal Email: kevinalexander@pkujournal.com
July 2, 2024
Season 2 Ep. 9 | Be A Healing Presence
In this episode of Never Give Up, I delve into the impact of being a healing presence in the rare disease community. I share personal stories, reflections, and a poignant encounter with a remarkable physician that reminded me of the power of empathy and kindness. Join me as we explore what it means to truly care for one another in our journey through life with rare diseases. Transcript Available A transcript of this episode is available on my blog. About Never Give Up: A Rare Disease Podcast This is a storytelling podcast exploring the intersection of life, mental health, and rare disease. Sometimes I interview guests, but mostly… I just want to tell you some stories. Stories about hope. Perseverance. Self-worth. Self-care. Stories that hopefully inspire you to keep going. And to never, never, never give up. Contact Kevin Alexander Website: PKUJournal.com Instagram: @kevinalexander_pku Facebook: @pkujournal Email: kevinalexander@pkujournal.com
June 25, 2024
Season 2 Ep. 8 | "Call Me Bob"
In my latest episode, "Call Me Bob," I delve into the life and legacy of Dr. Robert Guthrie, a pioneering figure in newborn screening. Guthrie's groundbreaking work in developing the bloodspot test for newborn screening has saved countless lives and continues to impact the world today. Join me as I share his story, the personal connections I've made with his family, and the profound lessons I've learned from his dedication to ensuring every baby gets a fair chance at life. Listen to discover how one person's relentless passion can change the world. Transcript Available A transcript of this episode is available on my blog. About Never Give Up: A Rare Disease Podcast This is a storytelling podcast exploring the intersection of life, mental health, and rare disease. Sometimes I interview guests, but mostly… I just want to tell you some stories. Stories about hope. Perseverance. Self-worth. Self-care. Stories that hopefully inspire you to keep going. And to never, never, never give up. Contact Kevin Alexander Website: PKUJournal.com Instagram: @kevinalexander_pku Facebook: @pkujournal Email: kevinalexander@pkujournal.com
33 total episodes available
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Frequently asked questions
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- What is Never Give Up: A Rare Disease Podcast?
- How often does this podcast release new episodes?
This podcast updates weekly.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Information about guest appearances is not available.
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