MPN Pod: Stories from the Marrow is a podcast about Myeloproliferative Neoplasms (MPNs) and is intended for patients, caregivers, providers, and the greater community impacted by MPNs. Each episode, MPNPod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community.
Transparency Statement:
MPN Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
Finding Support While Living With PV or ET: An Oncology Social Worker's Perspective
In this episode of MPN Pod, Kay and Josh sit down with Rachel Suarez, a licensed clinical social worker who specializes in oncology, to discuss the often overlooked emotional and psychological challenges of living with an MPN. Rachel explains what kind of support social workers can offer MPN patients, having worked with many PV and ET patients herself.
She also addresses how patients can advocate for themselves in medical appointments, talk about their diagnosis with family and friends, and take advantage of patient support organizations even when a social worker isn't available at their local treatment center. This episode is a reminder: MPN isn't a sprint, it's a marathon, and no one has to run it alone.
Check out piecetogetheret.com and piecetogetherpv.com to learn more.
Episode description will accompany podcast on podcast players.
Transparency Statement:
The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
18 Aug 2026
Everyday Life: Troy's Story of Fatigue, Music, & Resilience
In this episode of MPN Pod: Stories from the Marrow, hosts Josh and Kay speak with entrepreneur and musician Troy Putman about living with essential thrombocythemia, or ET.
Troy shares how ET-related fatigue changed his life, including his ability to perform as a drummer and keep up with the active lifestyle he once knew. He also discusses the importance of having a supportive care team, leaning on loved ones, and connecting with others in the MPN community. Through Troy's story, this episode explores the invisible impact of ET and reminds listeners that it's okay to feel scared, ask questions, and seek support.
Check out piecetogetheret.com and piecetogetherpv.com to learn more.
Transparency Statement:
MPN Pod: Stories from the Marrow is produced by Believe Limited (http://believeltd.com/) and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
8 Jul 2026
A Young Mom's Journey with Essential Thrombocythemia (ET)
On this episode of the MPN Pod, hosts Kay and Josh sit down with Raqueal, a 33-year-old mother of two from Arizona, to hear her journey with essential thrombocythemia (ET), from an unexpected discovery during pregnancy to years of inadequate medical communication and, ultimately, finding a specialist who truly listened. Raqueal shares how the "watch and wait" approach left her without answers, and how she learned to advocate for herself through research, online communities, and the courage to seek a second opinion. She also opens up about the invisible toll of living with ET, including debilitating fatigue, isolation, and the emotional weight of a diagnosis others can't see.
Check out piecetogetheret.com and piecetogetherpv.com to learn more.
Transparency Statement:
The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
Who has been a guest on PV Pod: Stories from the Marrow
Names identified in recent episode analyses. Showing up to five guests.
Steven Ames
Dr. Bose
Dr. Tremblay
Dr. Gerds
Nick Napolitano
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
Apple Podcasts (US)
4.8 / 5
20 ratings
Podcast Authority Score: 27 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
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