PWS Unfiltered
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Podcast Overview
<p>PWS Unfiltered is the podcast for every family navigating life with Prader-Willi Syndrome — the hard days, the victories, and everything no one else is talking about. No filter. No judgment. Just real people, real stories, and a community that says you belong here exactly as you are.</p>
Language
🇺🇲
Publishing Since
5/1/2026
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Recent Episodes
June 15, 2026
Navigating Systems
You're sitting in your car on your lunch break — not eating, not resting — on hold with insurance, hoping you get a real person before you have to go back inside. That's the reality no one tells you about when your child has Prader-Willi Syndrome. It's not just the caregiving. It's the second full-time job of fighting systems that weren't built with your family in mind — insurance denials, IEP meetings, waiver programs, providers who still don't quite get it. In this episode, Tanya gets into ...
May 31, 2026
What PWS Really Is
Before you Google it — listen to this first. Prader-Willi Syndrome has a clinical definition. It has a Wikipedia page. And none of that comes close to telling you what it actually looks like to live inside of it every single day. In this episode, Tanya breaks it down the way she wishes someone had broken it down for her — not the textbook version, but the real one. The hunger that never turns off. The misconceptions that make families feel invisible. The parts of this life that are hard to ex...
May 15, 2026
The Day Everything Changed
Before there was a diagnosis, there were years of knowing something was wrong and not being able to prove it. In this episode Tanya goes back to the very beginning — to Aiden's birth during COVID, to the NICU, to the years of appointments and therapies and unanswered questions that followed. She talks about the guilt that settled in almost immediately after birth and the weight of carrying it alone. She talks about being dismissed by providers, switching doctors, and what it finally felt like...
4 total episodes available
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Frequently asked questions
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- What is PWS Unfiltered?
<p>PWS Unfiltered is the podcast for every family navigating life with Prader-Willi Syndrome — the hard days, the victories, and everything no one else is talking about. No filter. No judgment. Just real people, real stories, and a community that says you belong here exactly as you are.</p> - How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Information about guest appearances is not available.
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