Rare and There
Claim This Podcastby Amicus Therapeutics UK
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Podcast Overview
<p>Understanding rare diseases, such as Fabry disease, can help reduce the diagnostic delay and improve management of the disease. This series explores Fabry disease in discussions with clinical experts who share their practical experience and patient perspectives to help bring Fabry onto the radar of healthcare providers.</p><br><p>This podcast is initiated, organised and funded by Amicus Therapeutics and intended for healthcare professionals in the UK and is not intended to replace the need for medical consultations. Copyright 2024 Amicus Therapeutics. All rights reserved. </p><br><p>NP-NN-UK-00031124 DOP: November 2024</p><hr><p style='color:grey; font-size:0.75em;'> Hosted on Acast. See <a style='color:grey;' target='_blank' rel='noopener noreferrer' href='https://acast.com/privacy'>acast.com/privacy</a> for more information.</p>
Language
🇺🇲
Publishing Since
11/19/2024
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Recent Episodes
February 25, 2025
Communication skills in clinical practice for rare diseases
<p>The sixth instalment of ‘Rare and There’ invites Dr. Lisa Kauffman an expert in communication skills for clinicians. She shares her insights on how to improve communication skills in clinical practice for individuals with rare disease. Living with a rare disease can be challenging, so providing effective communication in the clinic could be the key to fostering collaborations which accelerate the understanding, diagnosis and therapeutic management of rare diseases.</p><p> </p><p>This podcast was initiated, organised and funded by Amicus Therapeutics UK Operations Ltd and is intended for healthcare professionals in UK. The views expressed reflect the experience and opinions of the speaker. Individual experiences may vary. </p><p> </p><p>NP-NN-UKI-00161024 (date of preparation: February 2025)</p><hr><p style='color:grey; font-size:0.75em;'> Hosted on Acast. See <a style='color:grey;' target='_blank' rel='noopener noreferrer' href='https://acast.com/privacy'>acast.com/privacy</a> for more information.</p>
February 4, 2025
Rare diseases in cardiology clinical practice
<p>Cardiac involvement is common for rare diseases and carries a major prognostic impact, particularly for Fabry disease. This week Professor Richard Steeds and Dr. Ashwin Roy, consultant cardiologists from Birmingham, cover the key things cardiologists need to know about rare conditions like Fabry disease. Providing advice on what healthcare professionals should do in clinical practice, including other investigations and imaging to consider, and also touch on who to contact for advice when suspecting a rare disease. </p><br><p>This podcast was initiated, organised and funded by Amicus Therapeutics UK Operations Ltd and is intended for healthcare professionals in UK. The views expressed reflect the experience and opinions of the speakers. Individual experiences may vary. </p><br><p>NP-NN-UKI-00151024 (Date of preparation: October 2024)</p><hr><p style='color:grey; font-size:0.75em;'> Hosted on Acast. See <a style='color:grey;' target='_blank' rel='noopener noreferrer' href='https://acast.com/privacy'>acast.com/privacy</a> for more information.</p>
January 21, 2025
Health inequalities in rare disease
<p>In this episode, Dr. Sondra Butterworth shares her vision and values of enhancing wellbeing and promoting inclusivity for individuals with rare diseases. Dr. Butterworth is a community health psychologist and the CEO and Founder of RareQoL, a not for-profit social enterprise that aims to improve the quality of life for underserved communities. </p><br><p>She discusses how she has championed innovative and impactful projects for individuals with rare diseases over recent years, and highlights what more needs to be done to change the healthcare landscape for these individuals as we strive towards improving health equity for people living with rare diseases.</p><br><p>This podcast was initiated, organised and funded by Amicus Therapeutics UK Operations Ltd and is intended for healthcare professionals in UK. The views expressed reflect the experience and opinions of the speaker. Individual experiences may vary. </p><br><p>NP-NN-UKI-00181024 (Date of preparation: October 2024)</p><hr><p style='color:grey; font-size:0.75em;'> Hosted on Acast. See <a style='color:grey;' target='_blank' rel='noopener noreferrer' href='https://acast.com/privacy'>acast.com/privacy</a> for more information.</p>
6 total episodes available
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Frequently asked questions
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- What is Rare and There?
<p>Understanding rare diseases, such as Fabry disease, can help reduce the diagnostic delay and improve management of the disease. This series explores Fabry disease in discussions with clinical experts who share their practical experience and patient perspectives to help bring Fabry onto the radar of healthcare providers.</p><br><p>This podcast is initiated, organised and funded by Amicus Therapeutics and intended for healthcare professionals in the UK and is not intended to replace the need for medical consultations. Copyright 2024 Amicus Therapeutics. All rights reserved. </p><br><p>NP-NN-UK-00031124 DOP: November 2024</p><hr><p style='color:grey; font-size:0.75em;'> Hosted on Acast. See <a style='color:grey;' target='_blank' rel='noopener noreferrer' href='https://acast.com/privacy'>acast.com/privacy</a> for more information.</p> - How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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