Rising Up Rare
Claim This Podcastby Allie Ladd
Podcast Authority
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Podcast Overview
<p><b>Giving Hope, Creating Action</b></p><p>The Cure MPS1 Project uses MPS1 family stories and the six degrees of separation to create a movement and cure MPS1. Each child’s story is a testament to strength, resilience, and hope. By sharing their journeys, we aim to bring awareness to the world and connect people in a way that leads to real action. Through the Kennedy Ladd Foundation, we are committed to raising funds for MPS1 medical research, improving quality of life for affected families, and advocating for newborn screening in every state. Together, we will find a cure.”</p>
Language
🇺🇲
Publishing Since
10/12/2024
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Recent Episodes
June 9, 2025
The Weight of a Mother’s Instinct: Brooke & Finley’s Story
Host Ali Lad interviews Brooke Biddle about her experiences raising her daughter Finley through a rare disease diagnosis, highlighting a mother's instinct and fierce advocacy.
May 1, 2025
A Mother’s Fight to Save Her Son: Lincoln’s MPS 1 Journey | Cure MPS 1 Project
What would you do if your newborn was diagnosed with a fatal rare disease at just 7 days old? In this powerful episode of Rising Up Rare, host Allie Ladd, Executive Director of the Kennedy Ladd Foundation, speaks with Emma Mizer, mom to 18-month-old Lincoln, about their raw and emotional journey through diagnosis, treatment, and hope. Together, they share the launch of the "Cure MPS 1 Project," how early diagnosis changed everything, and why community and advocacy matter now more than ever. ...
April 6, 2025
Kennedy Stanford - Hope For Kennedy #CureMPS1Project
7 total episodes available
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Brooke Biddle
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Frequently asked questions
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- What is Rising Up Rare?
<p><b>Giving Hope, Creating Action</b></p><p>The Cure MPS1 Project uses MPS1 family stories and the six degrees of separation to create a movement and cure MPS1. Each child’s story is a testament to strength, resilience, and hope. By sharing their journeys, we aim to bring awareness to the world and connect people in a way that leads to real action. Through the Kennedy Ladd Foundation, we are committed to raising funds for MPS1 medical research, improving quality of life for affected families, and advocating for newborn screening in every state. Together, we will find a cure.”</p> - How often does this podcast release new episodes?
This podcast updates bi-weekly.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Information about guest appearances is not available.
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