SCN2A Insights
Claim This Podcastby SCN2A Australia
Podcast Overview
<p>Listen to SCN2A Insights to keep up to date with the latest research in SCN2A, genetic epilepsy and rare genetic disorders. Hosted by Ms Kris Pierce, RARE Global Advocacy Leadership Council member, and Dr David Cunnington, parents of Will, who has SCN2A.</p>
Language
🇺🇲
Publishing Since
9/10/2019
2 verified contact emails on file for SCN2A Insights
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Recent Episodes
February 20, 2022
Transition
Transitioning children with complex health needs such as those with SCN2A or other developmental epileptic encephalopathies is challenging. Dr Danielle Andrade from University of Toronto has been instrumental in producing a number of guides to the transition process and her ongoing research hopes to help further improve the process of transition.
January 29, 2022
Living With Epilepsy
Torie Robinson's lived experience makes her a powerful advocate for improving care for those with epilepsy.
March 27, 2021
Quality of Life Measures
Measuring quality of life is important, particularly in clinical trials, to capture the broader impacts of treatment beyond just measuring seizures.
28 total episodes available
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Frequently asked questions
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- What is SCN2A Insights?
<p>Listen to SCN2A Insights to keep up to date with the latest research in SCN2A, genetic epilepsy and rare genetic disorders. Hosted by Ms Kris Pierce, RARE Global Advocacy Leadership Council member, and Dr David Cunnington, parents of Will, who has SCN2A.</p> - How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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