Sharing Our Stripes

January 15, 2023

Disability Rewritten: Amplifying the Voices of Rare Patients with Dan Pezzetta

<p><strong>Sharing Our Stripes - Episode 1</strong></p> <p><strong>Disability Rewritten: Amplifying the Voices of Rare Patients with Dan Pezzetta</strong></p> <p><br></p> <p>Dan Pezzetta is a 23-year-old patient advocate living with Aortic Stenosis. Dan is currently attending George Washington University for Legislative Affairs, where he hopes to always make a tremendous impact in everything he does. Dan has had the pleasure to speak at M.I.T., Harvard, Rare Disease Week on Capitol Hill, and virtually during YARR's Summer Series.</p> <p>Dan recently started a passion project called Disability Rewritten where he talks about issues that disabled people have faced, historical moments or figures in the community, and highlighting people of today who have a story to share. You can find Dan on Instagram @disability.rewritten.</p> <p><br></p> <p><strong>Resources Mentioned:</strong></p> <p><a href="//EveryLife Foundation for Rare Diseases" target="_blank">https://everylifefoundation.org/</a></p> <p><a href="//Global Genes" target="_blank">https://globalgenes.org/</a></p> <p><a href="//Disability Rewritten" target="_blank">https://www.instagram.com/disability.rewritten/</a></p> <p><br></p> <p><strong>Connect With Laura:</strong></p> <p><a href="//Sharing My Stripes" target="_blank">https://www.instagram.com/sharingmystripes/</a></p> <p><a href="" target="_blank">https://twitter.com/ShareMyStripes</a></p> <p><br></p> <p>Are you a rare patient between the ages of 18-30? Are you interested in sharing your story? Email sharingmystripes@gmail.com for more information!</p>

September 28, 2022

Sharing Our Stripes (Trailer)