by MS Australia
Welcome to The Raw Nerve – the official Podcast of MS Australia – a conversation space for all things multiple sclerosis. Join us for news and views on the latest research, treatments, and advocacy efforts, as well as candid and informative interviews with our community; those living with MS and their families and carers, together with leading clinicians, researchers, and advocates. www.MSAustralia.org.au/podcast
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🇺🇲
Publishing Since
12/16/2022
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April 28, 2025
<p>In this episode of The Raw Nerve, host Jeremy Henderson sits down with Evie Boven, an Occupational Therapist at Grafton Base Hospital in New South Wales, who was diagnosed with Multiple Sclerosis (MS) in May 2024. Evie shares her compelling journey from experiencing initial symptoms to finally receiving a diagnosis, highlighting the challenges and misdiagnoses she faced along the way.</p><p>Evie discusses the profound impact her health background had on her ability to advocate for herself, the crucial support she received from her husband, friends, and colleagues, and the daily management of her symptoms. She also reflects on how her diagnosis has deepened her empathy and understanding in her professional role, enhancing her ability to support her patients.</p><p>Listeners will gain valuable insights into the importance of self-advocacy, the power of a strong support network, and the necessity of living life to the fullest despite a chronic illness. Evie also shares her future plans, including upcoming travel, and offers advice for those newly diagnosed with MS.</p>
April 21, 2025
<p>Do Australians care enough about healthcare at election time? What are the biggest public health challenges we face? What would it take to put the election spotlight on neurological health? And why is the Australian government continuing to underspend on health and medical research?</p><p>In this episode of The Raw Nerve, host Jeremy Henderson is joined by Dr Lesley Russell, Terry Slevin, and Rohan Greenland for a candid conversation about the urgent need to prioritise public health and disease prevention in national policy. The panel explores the lack of long-term healthcare commitments from major parties, the chronic underfunding of medical research, and what a minority government could mean for the future of health policy in Australia.</p><p><strong>Terry Slevin</strong><br>Terry Slevin has been the Chief Executive Officer of the Public Health Association of Australia (PHAA) since May 2018. He is an Adjunct Professor at both the National Drug Research Institute at Curtin University and the College of Health and Medicine at the Australian National University. He is a Fellow of PHAA and was the Association’s first Vice President (Development).</p><p><strong>Dr Lesley Russell</strong><br>Dr Lesley Russell is an Adjunct Associate Professor at the Leeder Centre for Health Policy, Economics and Data at the University of Sydney. She is a contributing editor at Croakey and has written the regular Health Wrap column since early 2018.</p><p><strong>Rohan Greenland</strong><br>Rohan Greenland is the CEO of MS Australia, Chair of the Neurological Alliance Australia, and an occasional host of The Raw Nerve podcast.</p><p><strong>Links:</strong></p><ul><li><a href="https://insightplus.mja.com.au/2025/8/prioritising-neurological-disease-research-do-our-leaders-have-the-nerve/" target="_blank" rel="noopener">Prioritising neurological disease research: do our leaders have the nerve? – Medical Journal Insight+, 3 March 2025</a></li><li><a href="https://www.msaustralia.org.au/news/ms-australia-2025-federal-election-statement/" target="_blank" rel="noopener">MS Australia 2025 Federal Election Statement – 28 March 2025</a></li><li><a href="https://www.croakey.org/the-medical-research-future-fund-has-grown-far-beyond-its-target-why-is-so-much-of-the-money-unused/" target="_blank" rel="noopener">The Medical Research Future Fund: Why is so much of the money unused? – Croakey / The Conversation, 3 April 2025</a></li><li><a href="https://phaa.net.au/" target="_blank" rel="noopener noreferrer">Public Health Association of Australia</a></li><li><a href="https://insightplus.mja.com.au/2025/8/prioritising-neurological-disease-research-do-our-leaders-have-the-nerve/" target="_blank" rel="noopener noreferrer">Croakey Health Media</a></li></ul>
April 14, 2025
<p><a href="https://www.themay50k.org/" target="_blank" rel="ugc noopener noreferrer">The May 50K</a> is fast approaching, ready to inspire people once again to move with purpose and support <a href="https://www.msaustralia.org.au/research/" target="_blank" rel="ugc noopener noreferrer">MS research</a>.</p><p>Since launching in 2019, this fun and flexible fitness challenge has raised more than 23.4 million dollars to support world-class research into the prevention, treatment and cure of multiple sclerosis.</p><p>Each May, thousands of people in Australia and around the world walk, run or roll 50 kilometres, or set their own goal, to help leave MS where it belongs, behind us.</p><p>In this episode, Raw Nerve host Jeremy Henderson speaks with a passionate group of guests who share their personal connection to the cause, how The May 50K works, and the incredible impact of the funds raised.</p><p>Sophie and <a href="https://www.themay50k.org/blog/anne-maree-oneil" target="_blank" rel="ugc noopener noreferrer">Anne-Maree</a> share their experiences of living with MS and how The May 50K supports their health and wellbeing. The group also explores some of the exciting research projects funded through the challenge, including new <a href="https://www.msaustralia.org.au/research-grants-mar-2025/" target="_blank" rel="ugc noopener noreferrer">grants</a>, the <a href="https://www.msaustralia.org.au/platypus/" target="_blank" rel="ugc noopener noreferrer">PLATYPUS clinical trial</a> and the <a href="https://www.msaustralia.org.au/ebv/" target="_blank" rel="ugc noopener noreferrer">EBV in MS platform</a>.</p><p>Guests:</p><ul><li>Rohan Greenland, CEO of MS Australia</li><li>Dr Tennille Luker, Deputy Head of Research at MS Australia</li><li>Sophie Drummond, Campaign Manager for The May 50K</li><li><a href="https://www.themay50k.org/blog/anne-maree-oneil" target="_blank" rel="ugc noopener noreferrer">Anne-Maree O’Neil</a>, an executive assistant in the transport industry, who lives with MS and was a top fundraiser in 2024</li></ul><p>Whether you are already signed up or simply curious about how movement can drive real change, this episode is a great source of inspiration to get involved.</p>
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