Where can I listen to this podcast?

This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.

Does this podcast accept guests?

Yes, this podcast regularly features guests.

Voices of AHP

Claim This Podcast

by Voices of AHP

4 episodes

Updated Daily

Accepts GuestsHas SponsorsLocation 🇬🇧

Podcast Overview

Voices of AHP is a podcast series aimed to raise awareness of Acute Hepatic Porphyria (AHP) amongst patients, healthcare professionals (HCPs) and the general public. It highlights what it is like to live with this chronic rare disease and features people living with AHP, their caregivers and members of patient advocacy groups who share their experiences and tips for others. Visit <a href="http://Livingwithporphyria.eu">Livingwithporphyria.eu</a> for more information. This podcast was produced and funded by Alnylam Pharmaceuticals and is available to the public for information purposes only; it should not be used for diagnosis or treating health problems or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further information and advice. The impact of the symptoms of AHP described in this podcast are based on the speaker’s personal experience and perspective of living with the condition, described in their own words. Not all people living with the condition will experience the same symptoms. Job Code: AS1-CEMEA-00199 Recording Job codes: AS1-UK-00002 AS1-DEU-00163 Date of Preparation: March 2021

Language

🇺🇲

Publishing Since

4/7/2021

View on Apple Podcasts RSS Feed

1 verified contact email on file for Voices of AHP

Pitch yourself as a guest, propose sponsorships, or reach out directly to the host.

See contact details

Recent Episodes

April 8, 2022

4: Maria & Ingela

<div>I detta avsnitt av Röster om AHP delar Maria sina erfarenheter av att leva med akut intermittent porfyri (AIP) med Ingela från Riksförbundet Mot Porfyrisjukdomar (RMP), som också lever med sjukdomen. De diskuterar sina erfarenheter av att leva med AIP, hur de hanterar symptomen, samt den genetiska sjukdomen och hur det är att prata med familjemedlemmar om att testa sig för den. <br> <br> Denna podcast initieras och sponsras av Alnylam Pharmaceuticals och är endast tillgänglig för allmänheten i informationssyfte. Innehållet ska inte användas för diagnostisering eller behandling av hälsoproblem och sjukdomar. Den är inte avsedd att ersätta konsultation och råd från sjukvårdspersonal. Konsultera din vårdgivare för mer information och råd. Effekterna av de symptom som diskuteras i podcasten är baserade på deltagarnas personliga erfarenheter och perspektiv på hur det är att leva med AHP, beskrivna med deras egna ord. Alla som lever med sjukdomen upplever inte samma symptom.<br> <br> Besök <a href="http://www.livingwithporphyria.eu/sv">www.livingwithporphyria.eu/sv</a> för mer information.<br> <br> Job Code: NP-SWE-00013<br> Podcast Job Code: NP-SWE-00011<br> Date of Preparation: February 2022</div>

February 10, 2022

3: Rosa María & Verónica

<div>En este episodio de la serie de podcast con pacientes de Voces de la PHA, Verónica comparte su experiencia de vivir con Porfiria Aguda Intermitente (PAI) con Rosa María de la Asociación Española de Porfiria (AEP) quien también vive con PAI. Hablan sobre de los signos y síntomas iniciales de Verónica y su progresión, así como de su vida desde el momento en que fue diagnosticada. Tras su diagnóstico, Verónica ha decidido involucrarse con asociaciones locales y ayuda asimismo a concienciar sobre la PAI.<br> <br> </div> <div>Este podcast ha sido promovido y financiado por Alnylam Pharmaceuticals y está disponible para el público únicamente con fines informativos; no debe utilizarse para diagnosticar o tratar problemas de salud o enfermedades. No pretende sustituir la consulta de un profesional médico. Por favor, consulte con su especialista para obtener más información y asesoramiento. El impacto y vivencias de los síntomas de la Porfiria Hepática Aguda descritos en este podcast se basan en la experiencia personal del testimonio de quien convive con esta enfermedad, descrita con sus propias palabras. No todas las personas que viven con esta enfermedad experimentan los mismos síntomas.<br> <br> </div> <div>Job Code: NP-ESP-00075<br> Podcast Job Code: NP-ESP-00076<br> Date of Preparation: November 2021</div>

April 7, 2021

2: Sabine, Agnes und Mechthild

<div>IIn dieser Folge des Podcasts „Stimmen zu AHP" spricht Sabine von Wegerer vom Berliner Leberring mit Agnes, die mit AHP lebt sowie ihrer Mutter Mechthild über Agnes' erste Symptome, die Diagnose und den Alltag mit der Krankheit. Agnes erzählt, wie ihre Liebe zur Musik sie positiv gestimmt hält und wie sie ein Gefühl der Erleichterung spürte, als sie wieder Geige spielen konnte.<br> <br> </div> <div>Dieser Podcast wurde von Alnylam Pharmacuticals produziert und finanziert und steht der Öffentlichkeit nur zu Informationszwecken zur Verfügung; er sollte nicht zur Diagnose oder Behandlung von Gesundheitsproblemen oder Krankheiten verwendet werden. Er ist nicht als Ersatz für die Konsultation eines Arztes gedacht. Bitte kontaktieren Sie Ihren Arzt für weitere Informationen und Ratschläge. Die in diesem Podcast beschriebenen Auswirkungen der AHP-Symptome beruhen auf den persönlichen Erfahrungen und der Perspektive der Sprecherin, die mit dieser Erkrankung lebt und sie in ihren eigenen Worten beschreibt. Nicht alle Menschen, die mit der Krankheit leben, werden die gleichen Symptome erfahren.<br> <br> </div> <div>Job Code: AS1-DEU-00173<br> Date of Preparation: April 2021<br> <br> </div>

4 total episodes available

Deep-dive analytics for Voices of AHP

Frequently asked questions

Have a different question and can't find the answer you're looking for? Reach out to our support team by sending us an email and we'll get back to you as soon as we can.

What is Voices of AHP?: Voices of AHP is a podcast series aimed to raise awareness of Acute Hepatic Porphyria (AHP) amongst patients, healthcare professionals (HCPs) and the general public.

It highlights what it is like to live with this chronic rare disease and features people living with AHP, their caregivers and members of patient advocacy groups who share their experiences and tips for others. Visit <a href="http://Livingwithporphyria.eu">Livingwithporphyria.eu</a> for more information.

This podcast was produced and funded by Alnylam Pharmaceuticals and is available to the public for information purposes only; it should not be used for diagnosis or treating health problems or disease. It is not intended to substitute for consultation with a healthcare provider. Please consult your healthcare provider for further information and advice. The impact of the symptoms of AHP described in this podcast are based on the speaker’s personal experience and perspective of living with the condition, described in their own words. Not all people living with the condition will experience the same symptoms.

Job Code: AS1-CEMEA-00199 Recording Job codes: AS1-UK-00002 AS1-DEU-00163 Date of Preparation: March 2021
How often does this podcast release new episodes?: This podcast updates daily.
Where can I listen to this podcast?: This podcast is available on 4 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
Does this podcast accept guests?: Yes, this podcast regularly features guests.

Legal Disclaimer

Pod Engine is not affiliated with, endorsed by, or officially connected with any of the podcasts displayed on this platform. We operate independently as a podcast discovery and analytics service.

All podcast artwork, thumbnails, and content displayed on this page are the property of their respective owners and are protected by applicable copyright laws. This includes, but is not limited to, podcast cover art, episode artwork, show descriptions, episode titles, transcripts, audio snippets, and any other content originating from the podcast creators or their licensors.

We display this content under fair use principles and/or implied license for the purpose of podcast discovery, information, and commentary. We make no claim of ownership over any podcast content, artwork, or related materials shown on this platform. All trademarks, service marks, and trade names are the property of their respective owners.

While we strive to ensure all content usage is properly authorized, if you are a rights holder and believe your content is being used inappropriately or without proper authorization, please contact us immediately at hey@podengine.ai for prompt review and appropriate action, which may include content removal or proper attribution.

By accessing and using this platform, you acknowledge and agree to respect all applicable copyright laws and intellectual property rights of content owners. Any unauthorized reproduction, distribution, or commercial use of the content displayed on this platform is strictly prohibited.