Confessions of a Rare Disease Mama

Confessions of a Rare Disease Mama

Hosted by Confessions of a Rare Disease Mama · Jillian Arnold

5.0from 57 ratings

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40Podcast AuthorityScore out of 100 · How it is scored
70
Episodes
2
Transcribed
57
Ratings
Monthly
Cadence
2022
First episode

About Confessions of a Rare Disease Mama

Join me every week as I navigate the ups and downs, and everything in between of the crazy stressful, but always beautiful life of being a rare disease parent.

Publisher
Jillian Arnold
Category
education · health & fitness · kids & family
Language
en
Explicit
No
First episode
19 May 2022
Latest episode
29 Sept 2026

Latest episodes

2 of 70 episodes have a transcript.

  1. 29 Sept 2026TRANSCRIPT

    The Mental Load No One Sees

  2. 2 Sept 2026TRANSCRIPT

    Mini Episode: All Aboard the Grief Train… CHOO CHOO

  3. 27 Mar 2026

    The Gap in Mental Health Support After a Diagnosis

Inside a recent episode

The Mental Load No One Sees

Published 29 Sept 2026 · Transcript excerpt

[…] It's the remembering, the anticipating, the researching, the scheduling, the decision making, the worrying. And more importantly, you can hand someone a task without actually handing them the mental load associated with it. That stays in our brain. And let's take giving a medication as a very easy example. So somebody else, AKA like a nurse or someone else can give my children their meds and they take that off my plate, that physical job off my plate. But I'm still the person who noticed it was getting low, requested the refill, followed up with the pharmacy a gazillion times, checked the dose, messaged a doctor, picked it up and made sure that everyone knew about the changes. […]

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Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

Apple Podcasts (US)
5.0 / 5
51 ratings
Spotify
5.0 / 5
6 ratings

Podcast Authority Score: 40 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality
31
Social presence
97
YouTube
0
Engagement
77

Questions about Confessions of a Rare Disease Mama

Who hosts Confessions of a Rare Disease Mama?

Confessions of a Rare Disease Mama host the show. Published by Jillian Arnold.

How often do new episodes come out?

The show publishes monthly, based on its RSS feed.

Where can I read transcripts?

2 of 70 episodes have a transcript on Pod Engine. Full transcripts are available with a Pod Engine plan.

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