As a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my family, and of families like ours. These are the stories of how we have persevered, cried, bonded, and grown. These are the stories of children who have been told that they cannot, and that have proved the world wrong.
Once Upon A Gene
Claim This Podcastby Effie Parks
5.0(330 reviews)
353 episodes
Updated Daily
Accepts GuestsHas SponsorsLocation 🇺🇸
65
Podcast Authority
BetaGoodBased on show quality, social media presence, reviews, charts, and more
Quality93
Social0
YouTube0
Engagement93
Podcast Overview
As a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my family, and of families like ours. These are the stories of how we have persevered, cried, bonded, and grown. These are the stories of children who have been told that they cannot, and that have proved the world wrong.
Language
🇺🇲
Publishing Since
10/28/2019
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65
Podcast Authority
BetaGoodBased on show quality, social media presence, reviews, charts, and more
Quality93
Social0
YouTube0
Engagement93
8
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9
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excellent
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Every 6 days
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320 reviews (5.0/5.0)
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Recent Episodes
June 11, 2026
ONCE UPON A GENE – EPISODE 276: His Two Sons Were Diagnosed with Coats Plus Syndrome — One Father’s Story of Rare Disease Advocacy and Brotherhood with Bryan Docobo
Attorney and advocate Bryan Docobo shares his profound journey of rare disease advocacy and brotherhood after his sons' Coats Plus Syndrome diagnoses, offering insights into resilience and turning pain into purpose.
May 28, 2026
ONCE UPON A GENE – EPISODE 275: How AI is Making Personalized Therapies Faster, Cheaper, and Accessible for the World’s Rarest Diseases with Steven Ringel
Host Effie Parks interviews Steven Ringel, CEO of Nome, about how AI accelerates personalized therapies for rare diseases, offering hope and actionable steps for patients.
May 21, 2026
ONCE UPON A GENE – EPISODE 274: Caregiver Archetypes of Survival (Part 4) | The Victim Archetype: From Cowardly Lion to Roaring Warrior – Reclaiming Your Inner Courage Without Losing Yourself with Christy Foster
Host Effie Parks and archetype expert Christy Foster interview each other about transforming the Victim Archetype into inner courage for parents of children with disabilities.
353 total episodes available with 17 transcripts
Recent guests on Once Upon A Gene
Guests from recent episodes — sign up to see every guest that has ever appeared on this show.
Bryan Docobo
Guest
Steven Ringel
Guest
Christy Foster
Guest
Lana Marcucio
Guest
Geraldine Bliss
Guest
Dr Maya Gosztyla
Guest
Emma Nadler
Guest
Dr Wendy Chung
Guest
Amber Pierson
Guest
Chelsea Kuhn
Guest
Jeffrey Allen
Guest
Gay Grossman
Guest
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Frequently asked questions
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- What is Once Upon A Gene?
- How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 10 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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