Once Upon A Gene
Hosted by Effie Parks and Dr Effie Parks and Effie · Effie Parks
5.0from 333 ratings
- 358
- Episodes
- 23
- Transcribed
- 333
- Ratings
- Bi-weekly
- Cadence
- 2019
- First episode
About Once Upon A Gene
As a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but that I had lost sight of for a time - I am not alone. And neither are you. These are the stories of my family, and of families like ours. These are the stories of how we have persevered, cried, bonded, and grown. These are the stories of children who have been told that they cannot, and that have proved the world wrong.
- Publisher
- Effie Parks
- Category
- kids & family · society & culture
- Language
- en
- Explicit
- No
- First episode
- 28 Oct 2019
- Latest episode
- 8 Oct 2026
Latest episodes
23 of 358 episodes have a transcript.
8 Oct 2026TRANSCRIPT
ONCE UPON A GENE- EPISODE #281: Making Memories: A Mom of a Daughter with Friedreich’s Ataxia on Last Steps, Make-A-Wish, and Not Letting the Future Steal the Day w/ Laurel Frost Coffey
1 Oct 2026TRANSCRIPT
ONCE UPON A GENE- EPISODE #280: Comparing Our Kids: Guilt, Milestones, and Connection in Rare Disease Parenting
24 Sept 2026TRANSCRIPT
ONCE UPON A GENE- EPISODE 279: Falling Into Place: A Pocket Bible of Wisdom from the Colorado Mama Tribe
Inside a recent episode
ONCE UPON A GENE- EPISODE #281: Making Memories: A Mom of a Daughter with Friedreich’s Ataxia on Last Steps, Make-A-Wish, and Not Letting the Future Steal the Day w/ Laurel Frost Coffey
Published 8 Oct 2026 · Transcript excerpt
[…] So how would you say that you look at it and perform that way? Yeah, I think the best way to focus on the joy is to just be present with Amelia. You know, it's so easy when you have a child that's diagnosed with these life-changing conditions to to think like what's next what's going to happen what's the next symptom the next loss the next challenge but you know that's not a healthy place to live in our mind so I have to be conscious constantly conscious about staying present with her like she is the best therapy in all of this just being with her and experiencing her like I'm always happy with her it's like when I'm not with her that's when the grief hits you know oh my gosh yes I totally know yeah I feel like sometimes there can be like warning signs for me if maybe I'm off that day or maybe Ford is being extra. […]
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See plansWho has been a guest on Once Upon A Gene
Names identified in recent episode analyses. Showing up to five guests.
- Laurel Frost Coffey
- Matt Abernethy
- Hannah Lowe
- Bryan Docobo
- Steven Ringel
Reach and audience
Public platform figures. Ratings count people who left a rating, not total listeners.
- Apple Podcasts (US)
- 5.0 / 5
- 281 ratings
- Spotify
- 4.9 / 5
- 52 ratings
Podcast Authority Score: 65 / 100
A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.
- Quality
- 93
- Social presence
- 0
- YouTube
- 0
- Engagement
- 93
Contact Once Upon A Gene
- Guest appearances
- Books guests
Based on episode analysis; this does not confirm that the show is currently accepting guests.
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Questions about Once Upon A Gene
Who hosts Once Upon A Gene?
Effie Parks and Dr Effie Parks and Effie host the show. Published by Effie Parks.
How often do new episodes come out?
The show publishes bi-weekly, based on its RSS feed.
Does Once Upon A Gene take guests?
Yes. Guests have been identified in episode analyses.
Where can I read transcripts?
23 of 358 episodes have a transcript on Pod Engine. Full transcripts are available with a Pod Engine plan.
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