by Madeline Cheney
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.
Language
🇺🇲
Publishing Since
5/7/2020
Email Addresses
1 available
Phone Numbers
0 available
April 24, 2025
Hosts Madeline and Alyssa Nutile discuss recent events impacting their community and the need for additional context in upcoming episodes, offering insights into navigating current challenges in this interview.
April 17, 2025
Host Rachel Alves interviews Ali Miller, Bethany Mikulis, Melissa Kellylove, and Rachel Alves about how parenting a disabled child reshapes their belief systems.
April 10, 2025
<p>For a lot of us, the answer isn’t simple. You can miss your lighter, less-traumatized self and feel proud of who you’ve become.</p><p>That’s the tension so many of us sit in as medical parents: grieving the carefree, well-rested version of ourselves while also seeing strength, resilience, and depth we didn’t know we had.</p><p>In this episode, I’m joined by Alyssa Nutile to unpack the big, messy feelings that come with identity loss, personality shifts, and how we change when our child’s life is on the line, plus the unexpected ways we’ve grown and adapted.</p><p><br></p><p><strong>Links:</strong></p><p>Hear Alyssa’s other episodes: <a href="https://therarelife.org/show-notes/ep-180-does-disability-parenting-ever-get-easier-survival-mode-burnout-mode-and-beyond-w-erica-stearns-and-alyssa-nutile">180: Does it get easier?,</a> <a href="https://therarelife.org/show-notes/ep-179-exhaustion-w-alyssa-nutile">179: Exhaustion,</a> <a href="https://therarelife.org/show-notes/ep-174-a-case-against-silencing-disability-parents-on-social-media-w-alyssa-nutile">174: Silencing,</a> <a href="https://therarelife.org/show-notes/ep-171-the-financial-strain-of-medical-parenting-w-amanda-griffith-atkins-alyssa-nutile">171: Financial Strain</a>, <a href="https://therarelife.org/show-notes/ep-170-hospitalizations-triggers-shoddy-sleep-and-food-discharge-hangover-w-alyssa-nutile-and-larisa-bothma">170: Hospitalizations,</a> <a href="https://therarelife.org/show-notes/ep-140-alyssas-story-a-mistaken-brain-surgery">140: Alyssa’s Story</a>, <a href="https://therarelife.org/show-notes/ep-140-alyssas-story-a-mistaken-brain-surgery">125: Travel w/ Disabled Kids</a></p><p><a href="https://docs.google.com/forms/d/e/1FAIpQLSfngJAzL1UjQ9FOKHwpLSNzj3nBXIKLZXYSbCYounjfqLxD5Q/viewform?usp=sf_link">Fill out our contact form</a> to join upcoming discussion groups!</p><p>Follow Alyssa at <a href="https://www.instagram.com/caffeinated_caregivers/">@caffeinated_caregivers!</a></p><p>Follow us on Instagram <a href="https://www.instagram.com/the_rare_life/">@the_rare_life</a>!</p><p><a href="https://therarelife.org/donate">Donate to the podcast</a> or <a href="https://therarelife.org/contact">Contact me</a> about sponsoring an episode.</p><p>Follow <a href="https://www.facebook.com/people/The-Rare-Life-Podcast/100039719031110/">the Facebook page</a>.</p><p>Join the Facebook group <a href="https://www.facebook.com/groups/parentsofrare">Parents of Children with Rare Conditions</a>.</p><p>Access the transcript on the website <a href="https://therarelife.org/">here</a>.</p><p>And if you love this podcast, please leave us a rating or review in your favorite podcast app!</p>
Kendra, The Lazy Genius
JLML Press
Feelings & Co.
Abby and Amy
Bryn Huntpalmer
Todd Kapostasy, Tara Lipinski
Glennon Doyle and Audacy
Erica Djossa
Lemonada Media
Mom Hour Media
Shawn Johnson + Andrew East
Nick Viall
[email protected]
Kelsey Wharton and Erica Ladd
Taylor Lautner
Pod Engine is not affiliated with, endorsed by, or officially connected with any of the podcasts displayed on this platform. We operate independently as a podcast discovery and analytics service.
All podcast artwork, thumbnails, and content displayed on this page are the property of their respective owners and are protected by applicable copyright laws. This includes, but is not limited to, podcast cover art, episode artwork, show descriptions, episode titles, transcripts, audio snippets, and any other content originating from the podcast creators or their licensors.
We display this content under fair use principles and/or implied license for the purpose of podcast discovery, information, and commentary. We make no claim of ownership over any podcast content, artwork, or related materials shown on this platform. All trademarks, service marks, and trade names are the property of their respective owners.
While we strive to ensure all content usage is properly authorized, if you are a rights holder and believe your content is being used inappropriately or without proper authorization, please contact us immediately at [email protected] for prompt review and appropriate action, which may include content removal or proper attribution.
By accessing and using this platform, you acknowledge and agree to respect all applicable copyright laws and intellectual property rights of content owners. Any unauthorized reproduction, distribution, or commercial use of the content displayed on this platform is strictly prohibited.