It’s a Lung Story is a podcast about aging with cystic fibrosis, hosted by Ahmet Uluer, DO, MPH, and Lauren Harvey, and produced by Andrea Gavin Becker. As medical advances allow more people with CF to live longer, the show explores what growing old with cystic fibrosis really looks like—the medical, the emotional, and the personal sides. Featuring expert guests and voices from all walks of the CF community, It’s a Lung Story offers honest conversation, lived experience, humor, and everything in between.
It's a Lung Story
Claim This Podcastby Dr. Ahmet Uluer and Lauren Harvey
5.0(26 reviews)
19 episodes
Updated Daily
Accepts GuestsHas SponsorsLocation 🇺🇸
15
Podcast Authority
BetaPoorBased on show quality, social media presence, reviews, charts, and more
Quality10
Social0
YouTube0
Engagement51
Podcast Overview
It’s a Lung Story is a podcast about aging with cystic fibrosis, hosted by Ahmet Uluer, DO, MPH, and Lauren Harvey, and produced by Andrea Gavin Becker. As medical advances allow more people with CF to live longer, the show explores what growing old with cystic fibrosis really looks like—the medical, the emotional, and the personal sides. Featuring expert guests and voices from all walks of the CF community, It’s a Lung Story offers honest conversation, lived experience, humor, and everything in between.
Language
🇺🇲
Publishing Since
2/14/2025
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15
Podcast Authority
BetaPoorBased on show quality, social media presence, reviews, charts, and more
Quality10
Social0
YouTube0
Engagement51
5
Excellent Areas
1
Good Performance
13
Growth Opportunities
excellent
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4.0/5
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good
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6.5/10
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Recent Episodes
May 29, 2026
Phage is the Rage: Bacteriophage Therapy for CF
In this interview, Ahmet Uluer, DO, MPH, Andrea Gavin Becker, Lauren Harvey, and Steffanie Strathdee, PhD, explore bacteriophage therapy's potential to combat antibiotic-resistant infections in cystic fibrosis patients, featuring Maggie Donovan's personal experience.
April 30, 2026
Don’t Slouch on This One! Functional PT & CF
<p>In this episode, we talk with Karen von Berg, a physical therapist at Johns Hopkins who’s spent her career helping people with cystic fibrosis navigate movement, function, and the realities of living in their bodies over time.</p> <p>We go beyond what most people might expect from physical therapy, diving into posture, breathing mechanics, and our favorite, exercise as snacks (really!). We also talk about the pelvic floor (yep, you have one) and its connection to incontinence, pain, and why so many people don’t bring it up.</p> <p>We get into what actually makes an exercise plan stick, why it’s so hard to know where to start, and how the all-or-nothing mindset gets in the way when energy, time, symptoms, or blood sugars don’t cooperate.</p> <p>Andrea and Lauren share their own experiences: what it’s like to lose momentum, struggle with motivation, and find movement that doesn’t look anything like a traditional workout.</p> <p>Also in this episode: weighted hula hoops, backstage bourbon, and Jane Fonda—naturally.</p>
March 31, 2026
The CF Community & the Chase for a Cure: Bijal P. Trivedi’s “Breath from Salt”
<p>In this episode, we talk with science journalist Bijal Trivedi, author of “Breath from Salt,” the definitive and surprisingly human account of how families, scientists, and clinicians helped transform cystic fibrosis (CF) from a fatal childhood disease into one of the greatest success stories in modern medicine. Joining the conversation is Kate O’Donnell, president of the Joey Fund and sister of Joey O’Donnell, whose life and legacy helped inspire one of the most powerful fundraising movements in the CF community.</p> <p>Bijal shares the story behind the book—how a single interview with Joey’s parents, Joe and Kathy O’Donnell, revealed a much bigger narrative about relentless parents, brilliant scientists, bold philanthropy and the power of community that helped drive breakthroughs like the development of CFTR modulators like Trikafta. Kate reflects on growing up in a family shaped by CF advocacy, what it means to carry that legacy forward, and how the community continues pushing toward treatments for everyone.</p> <p>We talk about the messy, human side of scientific progress: false starts, competing egos, impossible odds, and the moments when one insight can change everything. We also explore the infrastructure that helped make those breakthroughs possible—from centralized CF care centers to the patient registry that allowed researchers to track mutations, outcomes, and treatments across an entire community.</p> <p>Finally, we explore the questions the CF community is asking now: how the story evolves as people live longer, how to support those still waiting for therapies and why the work isn’t finished yet.</p> <p>Also in the episode: trips to the morgue, dark humor and a very special appearance by an English bulldog named Beans.</p>
19 total episodes available with 1 transcripts
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Frequently asked questions
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- What is It's a Lung Story?
- How often does this podcast release new episodes?
This podcast updates daily.
- Where can I listen to this podcast?
This podcast is available on 7 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
No, this podcast does not typically feature guests.
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