Hacking Hypermobility

About Hacking Hypermobility

Hi! We’re Luna and Shelli, also known as The Two Bendy Mommas. We talk about the lived experience of those affected by the inherited connective tissue disorders, and its intersection with neurodiversity, elevating marginalized and intersectional voices for our community. Please note: Hacking Hypermobility is produced in its entirety by three disabled women in various stages of life and parenting adventures. New episodes are typically released biweekly from January through July.

Publisher

Two Bendy Mommas

Category

health & fitness

Language

en

Explicit

Yes

First episode

1 Aug 2022

Latest episode

16 Aug 2026

Latest episodes

46 episodes in the feed.

1. 

   16 Aug 2026

   46: GLC 2026 After Thoughts

   Luna and Shelli review the good, bad, and the hilarious from their time at the EDS Society's 2026 Global Learning Conference. Did you know we have merch? Visit out store! (https://www.hackinghypermobility.com/shop)

2. 

   2 Aug 2026

   45: Binocular Vision Dysfunction

   All about Shell's recent BVD diagnosis and prism glasses Resources: Neurolens (https://neurolens.com/?utm_source=adwords&utm_medium=ppc&utm_campaign=Neurolens%20Campaign&utm_term=eye%20headache%20relief&utm_content=b2b&hsa_acc=9210659197&hsa_cam=23297344248&hsa_grp=188535816705&hsa_ad=785675127963&hsa_src=g&hsa_tgt=kwd-302074717919&hsa_kw=eye%20headache%20relief&hsa_mt=b&hsa_net=adwords&hsa_ver=3&gad_source=1&gad_campaignid=23297344248&gbraid=0AAAABCHYTymiT8E2gZkmHFOK-UTOhJ2HF&gclid=CjwKCAjw1bvTBhBbEiwAzbP8L0bHmqr2BTvmvfcZUXlRHJgEjfy_PcPUx5p9DY9etvNdPcAjBPi03xoCAxkQAvD_BwE) Many thanks to: Carolyn Stanley - Shelli's youngest kiddo and bendy art student Joe O'Connor - Newton Tech Navindi Weerasinghe - Chief Optician at Peepers Crofton/Gambrills Drs. Patel of Peepers Crofton/Gambrills 00:00 Introduction to the episode and personal health story 01:11 Explanation of binocular vision dysfunction and symptoms 02:38 Personal struggles with eye strain and vision focus 04:05 The process of getting prescribed neural lens glasses 07:12 Confirmation of vision issues through testing 10:40 Understanding the diagnosis and its implications 12:16 Connection to other health conditions and experiences 16:50 Explanation of eye strain and focus challenges 24:20 The impact of new glasses on vision and daily life 35:05 Experiencing the benefits of neural lens glasses 37:40 Fashion and functionality with new eyewear 38:27 Closing remarks and resources for viewers

3. 

   19 Jul 2026

   44: It's All Connected

   We're baaaaaaack. Buckle up, buttercups, this season opener is almost two hours long! References: EDS Society 2026 Global Learning Conference Information: https://www.ehlers-danlos.com/2026-global-learning-conference/ (https://www.ehlers-danlos.com/2026-global-learning-conference/) Petrucci-Nelson T, Guilhaumou S, Berrandou TE, Gensemer C, Georges A, Huff M, Fustier MA, Esmael A, Henry J, Jaye O, Phookan R, Dooley S, Byerly K, Loizzi B, Fenner R, Mach E, Weintraub A, Daylor V, Weninger J, Koren N, Bistran E, Griggs C, Griggs M, Severance S, Byrd R, Patel S, Kautz SA, Maitland A, Bouatia-Naji N, Norris RA. Complex Genetics and Regulatory Drivers of Hypermobile Ehlers-Danlos Syndrome: Insights from Genome-Wide Association Study Meta-analysis. medRxiv [Preprint]. 2025 Sep 21:2025.09.19.25336146. doi: 10.1101/2025.09.19.25336146. PMID: 41001447; PMCID: PMC12458961. Griggs M, Daylor V, Petrucci T, Weintraub A, Huff M, Willey S, Byerly K, Loizzi B, Morningstar J, Ball LE, Bethard JR, Drake R, Sharma A, Eichinger JK, Nichols M, Kautz S, Shapiro S, Maitland A, Patel S, Norris RA, Gensemer C. Proteomic discoveries in hypermobile Ehlers-Danlos syndrome reveal insights into disease pathophysiology. Immunohorizons. 2025 Sep 17;9(10):vlaf044. doi: 10.1093/immhor/vlaf044. PMID: 40972649; PMCID: PMC12448790. Gensemer C, Petrucci T, Beck T, Daylor V, Griggs M, Griggs C, Weintraub A, Byerly K, Guo L, Morningstar J, Kornblau I, Biggs R, Moore K, Koren N, Hastings C, Oberlies E, Zientara ER, Devey E, Dooley S, Stayer K, Fenner R, Singleton K, Luzbetak S, Bear D, Byrd R, Weninger J, Bistran E, Beeson G, Kerns J, Osterhaus M, Fleck E, Schnaudigel J, Butler S, Severance S, Kendall W, Delaney JR, Judge DP, Chen P, Yao H, Guz J, Awgulewitsch A, Kautz SA, Mukherjee R, Price R, Henderson F Sr, Shapiro S, Francomano CA, Kovacic JC, Lavallee M, Kontorovich AR, Berrandou TE, Slaugenhaupt SA, Milan D, Maitland A, Patel S, Bouatia-Naji N, Norris RA. KLK15 alters connective tissues in hypermobile Ehlers-Danlos syndrome. iScience. 2025 Aug 12;28(9):113343. doi: 10.1016/j.isci.2025.113343. PMID: 40949095; PMCID: PMC12424230. Due to size limitations, the preceding is a truncated list of studies referenced in this episode. Check out https://hackinghypermobility.com (https://hackinghypermobility.com) for a complete list.

Reach and audience

Public platform figures. Ratings count people who left a rating, not total listeners.

YouTube views

11,754

Score snapshot 15 Sept 2025

Apple Podcasts (US)

4.8 / 5

17 ratings

Spotify

4.8 / 5

18 ratings

Podcast Authority Score: 40 / 100

A composite of feed quality, social presence, YouTube performance and engagement. Read the methodology.

Quality

17

Social presence

0

YouTube

76

Engagement

82

Contact Hacking Hypermobility

Guest appearances

Does not typically book guests

Based on episode analysis; this does not confirm that the show is currently accepting guests.

Shows with a similar audience

• 

  Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein

• 

  Mast Cell Matters: Deep dives on MCAS with Tania Dempsey, MD - Presented by The POTScast

• 

  How We Live Now with Katherine May

• 

  The Mel Robbins Podcast

• 

  Neurodiversity Podcast

• 

  ADHD Chatter

Questions about Hacking Hypermobility