Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.
Lichen Sclerosus Podcast
Claim This Podcastby Kathy Ruiz-Carter
4.9(28 reviews)
75 episodes
Updated Bi-weekly
Accepts GuestsHas SponsorsLocation 🇺🇸
70
Podcast Authority
BetaGoodBased on show quality, social media presence, reviews, charts, and more
Quality66
Social0
YouTube93
Engagement90
Podcast Overview
Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.
Language
🇺🇲
Publishing Since
2/10/2020
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70
Podcast Authority
BetaGoodBased on show quality, social media presence, reviews, charts, and more
Quality66
Social0
YouTube93
Engagement90
7
Excellent Areas
2
Good Performance
10
Growth Opportunities
excellent
Episode Length
33 minutes
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good
Show Notes Quality
3.0/5
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Every 27 days
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Recent Episodes
June 19, 2026
Entering Our Lichen Planus Era: Diagnostic Blurs, Hidden Triggers, and New Hope with Dr. Erin Foster
Host Kathy interviews mucosal specialist Dr. Erin Foster about Lichen Planus, exploring its diagnostic challenges, hidden triggers, and new treatment hope.
May 7, 2026
Finding Hope When the Road Isn't Straight
<p>If you’ve disclosed your LS to someone and they brushed it off, that isn’t on you—it’s on them. Because when you share this, you are giving them a gift.</p><p>In this crossover episode, Kathy joins Penny Petersson from the <strong>Pelvic Power Podcast</strong> for a conversation that goes far beyond medical facts. They dive into the "juicy" reality of living with LS: the sting of medical gaslighting, the fear of being vulnerable with a new partner, and the exhaustion of trying to coordinate your own care when doctors won't talk to each other.</p><p>Kathy and Penny discuss why community is the antidote to the "isolated" feeling of a new diagnosis and how to find the "diamonds in the sh*t" even during a flare.</p><h3>In This Episode, We Discuss:</h3><ul><li><strong>The "Special" Connection:</strong> Why opening up about your vulvar health is an act of courage and how to handle people who don't treat that vulnerability with the care it deserves.</li><li><strong>Medical Gaslighting:</strong> The reality of being dismissed by providers and the specific research being done right now to help patients fight back.</li><li><strong>Taming the Beast:</strong> Why your diagnosis today is not your destiny in six months, and how to "keep moving" so you don't get stuck in the cycle of inflammation and stress.</li><li><strong>Practice Makes Progress:</strong> Why Kathy is bringing role-playing and advocacy scripts to this year's summit (because being a "baddie" takes practice).</li></ul><br/><h3>Resources & Links:</h3><p><strong>Connect with Penny Petersson</strong></p><ul><li>Follow Penny for pelvic yoga and pain management: <strong><a href="https://www.instagram.com/wellbeing.by.penny/" rel="noopener noreferrer" target="_blank">@wellbeingbypenny on Instagram</a></strong></li><li>Listen to more of the <strong>Pelvic Power Podcast</strong> on your favorite platform.</li><li>Spotify: <a href="https://open.spotify.com/show/5L5EST5vW5qbgcEhLfvqLD" rel="noopener noreferrer" target="_blank">https://open.spotify.com/show/5L5EST5vW5qbgcEhLfvqLD</a></li><li>YouTube: <a href="https://www.youtube.com/watch?v=YWZ9pZYm7r8" rel="noopener noreferrer" target="_blank">https://www.youtube.com/watch?v=YWZ9pZYm7r8</a></li></ul><br/><p><strong>Take the Next Step with LSSN</strong></p><ul><li><strong>WHS 2026 (May 11–15):</strong> If this conversation hit home, join us for the Wholistic Healing Summit. We have specific sessions on <strong>Medical Gaslighting Scripts</strong> and <strong>Advocacy Breakout Rooms</strong> to help you practice the conversations we talked about today.</li><li><strong>Choose Your Pass:</strong> From the Free Pass to the <strong>All-Access Pass</strong> (which includes the lifetime "LS Wikipedia" library Kathy mentioned), find the level of support you need. 👉 <strong><a href="https://lssupportnetwork.org/whs" rel="noopener noreferrer" target="_blank">Register for the Summit Here</a> <a href="https://lssupportnetwork.org/whs" rel="noopener noreferrer" target="_blank">https://lssupportnetwork.org/whs</a></strong></li></ul><br/><p><strong>Join the Community</strong></p><ul><li><strong>LS Warriors:</strong> Our private, recurring donor community for those who want to skip the "late-night search spiral" and get straight to expert-backed answers. 👉 <strong><a href="https://lssupportnetwork.org/membership" rel="noopener noreferrer" target="_blank">Become a Warrior</a> <a href="https://lssupportnetwork.org/membership" rel="noopener noreferrer" target="_blank">https://lssupportnetwork.org/membership</a></strong></li></ul><br/><p><strong>Give yourself reliable guidance:</strong> Join the summit and stop guessing about your care. <strong><a href="https://lssupportnetwork.org/whs" rel="noopener noreferrer" target="_blank">https://lssupportnetwork.org/whs</a></strong></p>
June 9, 2025
Reclaim Your Pleasure: Get Your Sexy Back with VLS!
Shauna, a somatic sex educator, guides listeners on reclaiming intimacy while living with vulvar lichen sclerosus, focusing on self-discovery and sexual rebirth in a supportive workshop setting.
75 total episodes available with 2 transcripts
Recent guests on Lichen Sclerosus Podcast
Guests from recent episodes — sign up to see every guest that has ever appeared on this show.
Erin Foster
Guest
Shauna
Guest
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Deep-dive analytics for Lichen Sclerosus Podcast
Frequently asked questions
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- What is Lichen Sclerosus Podcast?
- How often does this podcast release new episodes?
This podcast updates bi-weekly.
- Where can I listen to this podcast?
This podcast is available on 10 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
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