Tale of Two Zebras
Claim This PodcastPodcast Overview
<p>Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us. Why do we call ourselves Zebras? Good Question. When medical students are learning how to diagnosis patients in general, they are taught to think of the most common reason for the illness. The rare diseases are just that, rare. So if it looks like a horse, it's most likely a horse. BUT, there are rare illnesses out there. They are the Zebras. Both Amberlyn and Ann have the hypermobile type of Ehlers-Danlos Syndrome (EDS). There are 13 subtypes. You can learn more by visiting the Ehlers-Danlos Society website: <a href="https://www.ehlers-danlos.com/">https://www.ehlers-danlos.com</a>.</p><p>Ehlers-Danlos affects every system and part of the body. Patients are often sick and see many specialists. That is where the Tale of Two Zebras comes in. Amberlyn and Ann share the EDS diagnosis and several comorbidities but their paths to diagnosis and with treatment are very different.</p><p>With such different experiences, we hope we can relate to a large and diverse number of other Zebras and offer an understanding community.</p>
Language
🇺🇲
Publishing Since
8/3/2022
Reach the team behind Tale of Two Zebras
Verified contact details for this show aren't on file yet — sign up to get notified when they land.
Recent Episodes
May 22, 2024
Chronic Illness Grief
<p>Of course approaching the one year anniversary of losing someone very important, our thoughts turn to grief. In this episode we discuss grief as it pertains to chronic illness patients and even try to apply it to how the doctor's feel/act.<br/><br/>We've also added a resource to every discription which is the most elaborate checklist of symptoms associated with Ehlers-Danlos. You have to school a bit past some technical jargon but the checklist is there and easy to read. </p> <p>We're on YouTube too: <a href='https://www.youtube.com/@taleoftwozebras'>https://www.youtube.com/@taleoftwozebras</a><br/><br/>Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:<br/><a href='https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US'>https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US</a><br/><br/>Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: <a href='https://www.ehlers-danlos.com'>https://www.ehlers-danlos.com</a><br/><br/>Here is another checklist of common issues with EDS: <a href='https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf'>https://www.orthopt.org/uploads/Management_of_Hypermobility.pdf</a><br/><br/>If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com<br/><br/>Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: <a href='https://butyoudontlooksick.com/'>https://butyoudontlooksick.com</a> Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.</p>
May 1, 2024
Struggle Bus Season
<p>Tis the season! What season? Struggle Bus Season! And it doesn't just pertain to Spoonies but Amberlyn and Ann discuss the reality of the struggle and some ways to manage it. Hint: supportive friends and humor.</p> <p>We're on YouTube too: <a href='https://www.youtube.com/@taleoftwozebras'>https://www.youtube.com/@taleoftwozebras</a><br/><br/>Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:<br/><a href='https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US'>https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US</a><br/><br/>Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: <a href='https://www.ehlers-danlos.com'>https://www.ehlers-danlos.com</a><br/><br/>If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com<br/><br/>Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: <a href='https://butyoudontlooksick.com/'>https://butyoudontlooksick.com</a> Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.</p>
April 24, 2024
Severe Weather Prepping - Spoonie Style
<p>Both Amberlyn and Ann have some experience living in areas with severe weather and they've both gone through prepping education. While Amberlyn is much more formal with military training, Ann didn't do too shabby using using resources found at the library. <br/>Now is a great time to be talking to your providers about getting a few extra days worth of medications in case of an emergency. Don't forget to have your shoes handy and ready to go. <br/>And remember that part of prepping is thinking about the worst case scenario. You don't need to plan every detail in the event of a death, but it's a good idea to share basic wishes with your loved ones.</p> <p>We're on YouTube too: <a href='https://www.youtube.com/@taleoftwozebras'>https://www.youtube.com/@taleoftwozebras</a><br/><br/>Amberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:<br/><a href='https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US'>https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_US</a><br/><br/>Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: <a href='https://www.ehlers-danlos.com'>https://www.ehlers-danlos.com</a><br/><br/>If you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.com<br/><br/>Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: <a href='https://butyoudontlooksick.com/'>https://butyoudontlooksick.com</a> Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.</p>
84 total episodes available
Similar Podcasts
Discover related shows you might enjoy
Sci Guys
The Sci Guys
Finding Genius Podcast
Richard Jacobs
The ADHD Women's Wellbeing Podcast
Kate Moryoussef
The Doctor's Farmacy with Mark Hyman, M.D.
Dr. Mark Hyman
The Peter Attia Drive
Peter Attia, MD
MrBallen Podcast: Strange, Dark & Mysterious Stories
Ballen Studios
The Mel Robbins Podcast
Mel Robbins
Hidden Brain
Hidden Brain, Shankar Vedantam
We Can Do Hard Things
Treat Media and Glennon Doyle
Stuff You Should Know
iHeartPodcasts
Up First
NPR
The Daily
The New York Times
Deep-dive analytics for Tale of Two Zebras
Frequently asked questions
Have a different question and can't find the answer you're looking for? Reach out to our support team by sending us an email and we'll get back to you as soon as we can.
- What is Tale of Two Zebras?
<p>Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us. Why do we call ourselves Zebras? Good Question. When medical students are learning how to diagnosis patients in general, they are taught to think of the most common reason for the illness. The rare diseases are just that, rare. So if it looks like a horse, it's most likely a horse. BUT, there are rare illnesses out there. They are the Zebras. Both Amberlyn and Ann have the hypermobile type of Ehlers-Danlos Syndrome (EDS). There are 13 subtypes. You can learn more by visiting the Ehlers-Danlos Society website: <a href="https://www.ehlers-danlos.com/">https://www.ehlers-danlos.com</a>.</p><p>Ehlers-Danlos affects every system and part of the body. Patients are often sick and see many specialists. That is where the Tale of Two Zebras comes in. Amberlyn and Ann share the EDS diagnosis and several comorbidities but their paths to diagnosis and with treatment are very different.</p><p>With such different experiences, we hope we can relate to a large and diverse number of other Zebras and offer an understanding community.</p> - How often does this podcast release new episodes?
This podcast updates weekly.
- Where can I listen to this podcast?
This podcast is available on 9 platforms including Apple Podcasts, Spotify, and more. You can also use the RSS feed directly.
- Does this podcast accept guests?
Yes, this podcast regularly features guests.
Legal Disclaimer
Pod Engine is not affiliated with, endorsed by, or officially connected with any of the podcasts displayed on this platform. We operate independently as a podcast discovery and analytics service.
All podcast artwork, thumbnails, and content displayed on this page are the property of their respective owners and are protected by applicable copyright laws. This includes, but is not limited to, podcast cover art, episode artwork, show descriptions, episode titles, transcripts, audio snippets, and any other content originating from the podcast creators or their licensors.
We display this content under fair use principles and/or implied license for the purpose of podcast discovery, information, and commentary. We make no claim of ownership over any podcast content, artwork, or related materials shown on this platform. All trademarks, service marks, and trade names are the property of their respective owners.
While we strive to ensure all content usage is properly authorized, if you are a rights holder and believe your content is being used inappropriately or without proper authorization, please contact us immediately at hey@podengine.ai for prompt review and appropriate action, which may include content removal or proper attribution.
By accessing and using this platform, you acknowledge and agree to respect all applicable copyright laws and intellectual property rights of content owners. Any unauthorized reproduction, distribution, or commercial use of the content displayed on this platform is strictly prohibited.